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What is Thalassemia?

Thalassemia is a rare inherited disorder characterized by a reduced rate of synthesis of one of the globin chains that make up hemoglobin.


Thalassemia is a rare inherited disorder characterized by a reduced rate of synthesis of one of the globin chains that make up hemoglobin.
Acknowledgement of Thalassemia has not been added yet.
Prevalence Information of Thalassemia has not been added yet.
Synonyms for Thalassemia has not been added yet.
Anemia is the primary symptom of Thalassemia
Name Description
Anemia Anemia is a deficiency of hemoglobin.
Diagnosis of Thalassemia has not been added yet.
Diagnostic tests of Thalassemia has not been added yet
Treatments of Thalassemia has not been added yet.
Prognosis of Thalassemia has not been added yet.
Tips or Suggestions of Thalassemia has not been added yet.
References of Thalassemia has not been added yet.
Article on Arrivant as potential therapy for sickle cell and thalassemia in RareShare news link section. Created by RareshareTeam
Last updated 28 Nov 2018, 04:47 AM

Posted by RareshareTeam
28 Nov 2018, 04:47 AM

hasharon blood disorder Created by susanfv
Last updated 5 Oct 2010, 02:31 AM

Posted by susanfv
5 Oct 2010, 02:31 AM

Hi! I would love to hear from anyone who has been diagnosed with hasharon blood disorder.I'm told by RareShare that thalassemia is the most similiar disorder to hasharon.

Community External News Link
Title Date Link
FDA Approves REBLOZYL® (luspatercept-aamt) for the Treatment of Anemia in Adults With Beta Thalassemia Who Require Regular Red Blood Cell Transfusions 11/17/2019
Newborn Screening Practices and Alpha-Thalassemia Detection — United States, 2016 09/12/2020
I've had a blood transfusion every 3 weeks since I was 2 months old due to a rare disease that can kill people in their 30s 03/20/2022
Editas Medicine Gets FDA Rare Pediatric Disease Designation for EDIT-301 05/01/2022
bluebird bio Announces FDA Approval of ZYNTEGLO®, the First Gene Therapy for People with Beta-Thalassemia Who Require Regular Red Blood Cell Transfusions 08/21/2022
The Most Expensive Drug in the US is a Rare-Disease Game Changer 08/28/2022
FDA widens approval of Vertex’s CRISPR medicine to treat beta thalassemia 01/17/2024
Community Resources
Title Description Date Link
Thalassaemia International Federation

An International non-governmental organisation coordinating the various issues of thalassaemia associations globally.


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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit to enroll.

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I am Dr. Tushar R. Desai working as the Director, School of Pharmacy and Dean, Faculty of Doctoral Studies & Research at RK University, Rajkot, Gujarat, India. I have 30 years of experience in...

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I am a 24 year old African American female living in Southern California. I was diagnosed with Beta-Thal at the tender age of 1. I love music and dancing. I have a beautiful 3yr. old girl who is...
Parent of two children with rare congenital health conditions (thalassemia and ventricular septal defect). Husband diagnosed later in life with rare motility disorder (achalasia). President of...

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