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Tethered Spinal Cord Syndrome

What is Tethered Spinal Cord Syndrome?

Tethered Spinal Cord Syndrome is a rare disorder caused by tissue attachments, limiting the movement of the spinal cord within the spinal column.

 

Tethered Spinal Cord Syndrome is a rare disorder caused by tissue attachments, limiting the movement of the spinal cord within the spinal column.
Acknowledgement of Tethered Spinal Cord Syndrome has not been added yet.
Prevalence Information of Tethered Spinal Cord Syndrome has not been added yet.
Synonyms for Tethered Spinal Cord Syndrome has not been added yet.
Cause of Tethered Spinal Cord Syndrome has not been added yet.
low back pain, urinary &/or bowel incontinence
tethered spinal cord
Diagnostic tests of Tethered Spinal Cord Syndrome has not been added yet
tethered cord release surgery
Tips or Suggestions of Tethered Spinal Cord Syndrome has not been added yet.
References of Tethered Spinal Cord Syndrome has not been added yet.
Tarlov cysts Created by Jean
Last updated 25 May 2012, 08:44 PM

Posted by Jean
25 May 2012, 08:44 PM

Since tethered cord surgery, I have developed Tarlov cysts. Does anyone have any info on this condition? Need Help!

Spinal Cord & Brainstem Compression Created by Jean
Last updated 12 Oct 2010, 06:32 AM

Posted by Jean
12 Oct 2010, 06:32 AM

Also have the above condition. Doesn't any one else have these problems? I know I'm not the only one. I don't know just what to do on this site. I'm also a new computer user so I'm kinda lost here.

Tethered cord Created by Jean
Last updated 21 Sep 2010, 05:49 AM

Posted by Jean
21 Sep 2010, 05:49 AM

Does anyone have any information on this condition?

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Tarlov cysts

Created by Jean | Last updated 25 May 2012, 08:44 PM

Spinal Cord & Brainstem Compression

Created by Jean | Last updated 12 Oct 2010, 06:32 AM

Tethered cord

Created by Jean | Last updated 21 Sep 2010, 05:49 AM


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