Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Takayasu Arteritis

What is Takayasu Arteritis?

Takayasu Arteritis is a rare form of vasculitis characterized by inflammation that damages large and medium-sized blood vessels.

 

Takayasu Arteritis is a rare form of vasculitis characterized by inflammation that damages large and medium-sized blood vessels.
Acknowledgement of Takayasu Arteritis has not been added yet.
0.45http://www.orpha.net
Synonyms for Takayasu Arteritis has not been added yet.
Cause of Takayasu Arteritis has not been added yet.
Symptoms for Takayasu Arteritis has not been added yet.
Diagnosis of Takayasu Arteritis has not been added yet.
Diagnostic tests of Takayasu Arteritis has not been added yet
Treatments of Takayasu Arteritis has not been added yet.
Prognosis of Takayasu Arteritis has not been added yet.
Tips or Suggestions of Takayasu Arteritis has not been added yet.
References of Takayasu Arteritis has not been added yet.
Hello Everyone... Created by MsStormAdjuster
Last updated 26 Jul 2008, 03:34 AM

Posted by MsStormAdjuster
26 Jul 2008, 03:34 AM

Hey Karen, I am sorry that it has taken so long for me to reply....I hope you are doing great...My left subclavian is 100 percent occluded as well as my SMA....I have taken cytoxin, predision and Remicade..at the present time in all I think I take abou16 pills daily...Hope to hear from you soon... Your fellow TA'er Tammy

Posted by karenfourcats
20 Jul 2008, 03:05 PM

Hi Tammy, My name is Karen and I also have TAK. How long ago were you diagnosed? I was officially diagnosed in Jan 2008, but have had it MUCH longer than that. I had carotid to subclavian bypasses on both sides about four years ago. Doing ok now :) Karen

Posted by MsStormAdjuster
12 Jul 2008, 03:44 AM

I wanted to introduce myself..My Name is Tammy and I have TAK...I would love to get to know others that have this rare disease...I think it is wonderful that we have this site so we can share... Tammy

Community External News Link
Title Date Link
Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

I diagnosed with Takayasu's...
Mother of 24 year old son w...
Diagnosed in Match 2011
i am 33year old ...

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

Hello Everyone...

Created by MsStormAdjuster | Last updated 26 Jul 2008, 03:34 AM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.