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Serpiginous Choroiditis

What is Serpiginous Choroiditis ?

Serpiginous Choroiditis is a rare inflammatory disease of the retina.

 

Serpiginous Choroiditis is a rare inflammatory disease of the retina.
Acknowledgement of Serpiginous Choroiditis has not been added yet.
Prevalence Information of Serpiginous Choroiditis has not been added yet.
Synonyms for Serpiginous Choroiditis has not been added yet.
Cause of Serpiginous Choroiditis has not been added yet.
Symptoms for Serpiginous Choroiditis has not been added yet.
Diagnosis of Serpiginous Choroiditis has not been added yet.
Diagnostic tests of Serpiginous Choroiditis has not been added yet
Treatments of Serpiginous Choroiditis has not been added yet.
Prognosis of Serpiginous Choroiditis has not been added yet.
Tips or Suggestions of Serpiginous Choroiditis has not been added yet.
References of Serpiginous Choroiditis has not been added yet.
newbie Created by lukeduke89
Last updated 30 Mar 2015, 07:49 PM

Posted by themai4
30 Mar 2015, 07:49 PM

Hi! I just found this forum! I've had Serp for about 8 years now. Was in remission for the last 7 years and have just discovered it is returning. Just wondering what others are doing now. I was on an aggressive medication cocktail for about 18 months after my diagnosis. The dr. was spot on when he said remission can last anywhere from 5-8 years. Any new info/advice is greatly appreciated!

Posted by lukeduke89
5 Mar 2014, 01:58 AM

just introducing myself and looking for information on Serp. not sure how this format works but look forward to conversing with someone

Medications Created by SRhoads
Last updated 1 Jan 2014, 10:33 PM

Posted by SRhoads
1 Jan 2014, 10:33 PM

I was just curious as to what medications everyone takes, how long, etc...and maybe kind of how you were diagnosed and that process? Thanks!

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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newbie

Created by lukeduke89 | Last updated 30 Mar 2015, 07:49 PM

Medications

Created by SRhoads | Last updated 1 Jan 2014, 10:33 PM


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