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Schwannomatosis

What is Schwannomatosis?

Schwannomatosis is a rare disorder affecting the peripheral nervous system where benign tumors called schwannomas grow on perippheral nerves.

 

Schwannomatosis is a rare disorder affecting the peripheral nervous system where benign tumors called schwannomas grow on perippheral nerves.
Acknowledgement of Schwannomatosis has not been added yet.
Prevalence Information of Schwannomatosis has not been added yet.
Synonyms for Schwannomatosis has not been added yet.
Cause of Schwannomatosis has not been added yet.
Symptoms for Schwannomatosis has not been added yet.
Diagnosis of Schwannomatosis has not been added yet.
Diagnostic tests of Schwannomatosis has not been added yet
Treatments of Schwannomatosis has not been added yet.
Prognosis of Schwannomatosis has not been added yet.
Tips or Suggestions of Schwannomatosis has not been added yet.
References of Schwannomatosis has not been added yet.
schwannomatosis Created by jollyjane
Last updated 6 Oct 2010, 10:09 AM

Posted by jollyjane
6 Oct 2010, 10:09 AM

I have recently been diagnosed with schwannomatosis and I am interested in talking to other people with experience of this condition. I am in England and so far I have found the condition is not well known. Fortunately we have two expert centres here, one in Manchester and the other at Guy's Hospital in London. I have an appointment at Guy's in 2 weeks, to meet Dr Ros Ferner. I am scheduled to have surgery to remove a sciatic schwannoma at the Royal National Orthopaedic Hospital at Stanmore. I am interested in talking to anyone else with this condition, especially their experience of monitoring of their condition and prognosis.

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Visit sanfordresearch.org/CoRDS to enroll.

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schwannomatosis

Created by jollyjane | Last updated 6 Oct 2010, 10:09 AM


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