Raynaud's Disease is a disorder characterized by some areas of the body, including fingers, toes, the nose, and ears to feel numb and cool in response to cold temperatures or stress.
Hi Larry I take Nifedipine which really makes a difference to my Raynauds. I was on it a good 6 months though before it really kicked in. Never tried massage for this though and not sure if chiropractor can help sorry. Katrina
I want to report that 6 massage sessions over a period of 6 weeks did not help my Raynauds one bit. The therapist massaged areas of my upper body that she said might help with the circulation in my hands. I am reluctant to try chiropractic because of this. Larry
Larry, Do you have stiffness with your Raynauds? You may want to talk with a neurologist for other related diseases like myotonia congenita, paramyotonia congenita, etc. I have Raynauds and paramyotonia congenita. Massage therapy and chiropractors didn't work. You need to try to stay warm. The easiest way to stay warm is heat your body core - drink warm fluids, wear gloves/scarf/hat. I take diltiazem (cardizem) which eases my Raynauds symptoms - it is always a higher dose in the winter time. I hope this helps.
I have redness around the nails. As I understand it, the redness is caused by unusually shaped blood vessels which have shown a correlation to pulmonary hypertension.
Does anyone have just one finger that seems to get cold first and last longer than the others. Are you noticing redness around the nails? Just curious.
I have Raynauds & Livedo Reticularis and was diagnosed with Sneddons after 3 strokes from the age of 33.
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
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