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Prurigo nodularis

What is Prurigo nodularis?

Prurigo nodularis is a skin disease characterized by itchy lumps, which usually appear on the arms or legs.

 

Prurigo nodularis is a skin disease characterized by itchy lumps, which usually appear on the arms or legs.
Acknowledgement of Prurigo nodularis has not been added yet.
Prevalence Information of Prurigo nodularis has not been added yet.
Synonyms for Prurigo nodularis has not been added yet.
Cause of Prurigo nodularis has not been added yet.
Symptoms for Prurigo nodularis has not been added yet.
Diagnosis is based on a visual examination.
Diagnostic tests of Prurigo nodularis has not been added yet
Treatments of Prurigo nodularis has not been added yet.
Prognosis of Prurigo nodularis has not been added yet.
Tips or Suggestions of Prurigo nodularis has not been added yet.
References of Prurigo nodularis has not been added yet.
current status Created by pbwfp
Last updated 13 Feb 2014, 09:44 PM

Posted by pbwfp
13 Feb 2014, 09:44 PM

Hi, I forgot about this site as it isnt very informative. I have been taking allergy meds both morning and night. Im having trouble with entering this narrative. Sorry. I am using fluocinonide

Posted by ylvu28
26 Apr 2012, 09:02 PM

Hello pbwfp, I just found this site...not sure if you still check it but I have had PN for about 5 years now and was wondering what you did to treat your PN. Thanks! ylvu28

Posted by pbwfp
18 Jan 2010, 11:14 PM

Hi. I am in a recovery state right now. I have no new sores in the last month.

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Created by pbwfp | Last updated 13 Feb 2014, 09:44 PM


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