Polymyalgia Rheumatica is an inflammatory condition of the muscles characterized by pain or stiffness.
i was told 3 days ago i had pmr never heard of it before. the rummy took blood test. my neck and arms where sore i could not get out of a chair by myself. he gave me 10 mg of prednisone a day It already feels better after 3 days
Hi there, I'm new on this forum but would very much like to hear your PMR stories especially how you were diagnosed and the treatment you were given as from other stories I've heard there seems to be little consistancy between GPs in these areas. Sue
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
I am 55 years old and always thought I was healthy even though I have struggled with chronic lower back pain for over 30...
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Created by SuePMRUK | Last updated 21 Jun 2012, 03:53 PM
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