Parapsoriasis is a heterogenous group of rare skin disorders characterized by red, scaly skin.
Thanks, Mahkus. I do have concern about the light therapy/skin cancer connection. Here's hoping that they'll find a real cure soon.
Hi palmtree, I've had patches of parapsoriasis about thirteen years now. Took a few years to get it diagnosed properly. I've been to a Chinese doctor and got the acupuncture and herbs. That didn't make any difference. Also the topical steroids don't do anything for my patches either. I have tried different diets but it's hard to tell if they make a difference because they are hard to stick to 100%. The UV treatment is the only thing that's definitely worked for me. Stick to it and the light clears up the skin very well. The only trouble is the patches gradually come back after a few months. So I keep having the phototherapy every 18 months to 2 years. I don't know if they'll ever go away permanently.
Hi! I've had an itchy rash since March 2013 that has now been diagnosed as parapsoriasis by punch biopsy. I am undergoing light therapy (phototherapy) with UV light at the present, and apparently this has had a good percentage of lessening of the rash. An acupuncturist suggested I watch my diet, and not being well disciplined in this department, I have some problem with it. So, one suggestion is to do a diet without milk products or bread, not to mention no sugary desserts. Has anyone else had some good results with anything besides the light therapy and topical steroids?
Diese Frage stellte ich mir selbst vor einigen Monaten. Um mehr über meine Krankheit herauszufinden begab ich mich ins Internet und suchte nach Erklärungen, Gleichgesinnten, Behandlungsmethoden und Erfahrungsberichten. Verteilt fand ich auch einige Informationen, gleichzeitig stolperte ich aber auch immer wieder über die Frage nach Communities und Selbsthilfegruppen. Diese Frage blieb leider immer unbeantwortet. Tja was liegt also näher als selbst die Plattform für eine solche Community bereitzustellen und alle Betroffenen einzuladen sich hier auszutauschen. Daher möchte ich dich recht herzlich auf http://www.parapsoriasis.net einladen - die Community für Menschen mit ParaPsoriasis! Noch ist das Forum recht leer aber mit deiner Hilfe wird es sich rasch füllen, denn nur gemeinsam können wir mehr über unsere Krankheit herausfinden. Ich freue mich schon auf deine Beiträge! Vicente
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