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Parapsoriasis

What is Parapsoriasis?

Parapsoriasis is a heterogenous group of rare skin disorders characterized by red, scaly skin.

 

Parapsoriasis is a heterogenous group of rare skin disorders characterized by red, scaly skin.
Acknowledgement of Parapsoriasis has not been added yet.
Prevalence Information of Parapsoriasis has not been added yet.
Synonyms for Parapsoriasis has not been added yet.
Cause of Parapsoriasis has not been added yet.
Symptoms for Parapsoriasis has not been added yet.
Diagnosis of Parapsoriasis has not been added yet.
Diagnostic tests of Parapsoriasis has not been added yet
Treatments of Parapsoriasis has not been added yet.
Prognosis of Parapsoriasis has not been added yet.
Tips or Suggestions of Parapsoriasis has not been added yet.
References of Parapsoriasis has not been added yet.
Hello, I'm new here Created by palmtree
Last updated 10 Apr 2014, 02:26 AM

Posted by palmtree
10 Apr 2014, 02:26 AM

Thanks, Mahkus. I do have concern about the light therapy/skin cancer connection. Here's hoping that they'll find a real cure soon.

Posted by mahkus
8 Apr 2014, 08:24 AM

Hi palmtree, I've had patches of parapsoriasis about thirteen years now. Took a few years to get it diagnosed properly. I've been to a Chinese doctor and got the acupuncture and herbs. That didn't make any difference. Also the topical steroids don't do anything for my patches either. I have tried different diets but it's hard to tell if they make a difference because they are hard to stick to 100%. The UV treatment is the only thing that's definitely worked for me. Stick to it and the light clears up the skin very well. The only trouble is the patches gradually come back after a few months. So I keep having the phototherapy every 18 months to 2 years. I don't know if they'll ever go away permanently.

Posted by palmtree
5 Dec 2013, 03:41 AM

Hi! I've had an itchy rash since March 2013 that has now been diagnosed as parapsoriasis by punch biopsy. I am undergoing light therapy (phototherapy) with UV light at the present, and apparently this has had a good percentage of lessening of the rash. An acupuncturist suggested I watch my diet, and not being well disciplined in this department, I have some problem with it. So, one suggestion is to do a diet without milk products or bread, not to mention no sugary desserts. Has anyone else had some good results with anything besides the light therapy and topical steroids?

Diagnose: Parapsoriasis - was tun? Created by Vicente
Last updated 12 Jun 2009, 09:58 PM

Posted by Vicente
12 Jun 2009, 09:58 PM

Diese Frage stellte ich mir selbst vor einigen Monaten. Um mehr über meine Krankheit herauszufinden begab ich mich ins Internet und suchte nach Erklärungen, Gleichgesinnten, Behandlungsmethoden und Erfahrungsberichten. Verteilt fand ich auch einige Informationen, gleichzeitig stolperte ich aber auch immer wieder über die Frage nach Communities und Selbsthilfegruppen. Diese Frage blieb leider immer unbeantwortet. Tja was liegt also näher als selbst die Plattform für eine solche Community bereitzustellen und alle Betroffenen einzuladen sich hier auszutauschen. Daher möchte ich dich recht herzlich auf http://www.parapsoriasis.net einladen - die Community für Menschen mit ParaPsoriasis! Noch ist das Forum recht leer aber mit deiner Hilfe wird es sich rasch füllen, denn nur gemeinsam können wir mehr über unsere Krankheit herausfinden. Ich freue mich schon auf deine Beiträge! Vicente

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Hello, I'm new here

Created by palmtree | Last updated 10 Apr 2014, 02:26 AM

Diagnose: Parapsoriasis - was tun?

Created by Vicente | Last updated 12 Jun 2009, 09:58 PM


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