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Paraneoplastic Cerebellar Degeneration

What is Paraneoplastic Cerebellar Degeneration?

Paraneoplastic cerebellar degeneration is believed to be the body's immune system's attempt to destroy a tumor resulting in damage to the cerebellum.

 

Paraneoplastic cerebellar degeneration is believed to be the body's immune system's attempt to destroy a tumor resulting in damage to the cerebellum.
Acknowledgement of Paraneoplastic Cerebellar Degeneration has not been added yet.
Prevalence Information of Paraneoplastic Cerebellar Degeneration has not been added yet.
Synonyms for Paraneoplastic Cerebellar Degeneration has not been added yet.
Cause of Paraneoplastic Cerebellar Degeneration has not been added yet.
My experience with the symptoms include: feet feel asleep 100% of the time; appetite changed; taste sensation changed; balance severely diminished; ataxia; myoclonic jerks; lethargy, weakness, &/or fatigue; diminished memory & logical capacity.
Diagnosis of Paraneoplastic Cerebellar Degeneration has not been added yet.
Diagnostic tests of Paraneoplastic Cerebellar Degeneration has not been added yet
I responded very well to intravenous dosages of methylprednisolone (1 gram at a time)... started off daily for 5, then weekly, then bi-weekly, and now monthly. When I was taken off, in hopes that my CellCept rx would do the trick, I had a total & complete relapse. Now am back on steroid & symptom-free except for the asleep feet. Dr Sean Pittock at the Mayo Clinic (Rochester) is principally treating me, but I must give kudos to my local internist (Dr EC O'Bryan) and neurologist (Dr Michael Hodge) for a very early suspicion & diagnosis.
Will be taking steroids long-term. No longevity effect anticipated.
Tips or Suggestions of Paraneoplastic Cerebellar Degeneration has not been added yet.
References of Paraneoplastic Cerebellar Degeneration has not been added yet.
General Info, perhaps useful Created by BillyReyn
Last updated 13 Jul 2009, 09:38 PM

Posted by Teodor
13 Jul 2009, 09:38 PM

Hallo, I'm pharmacist from Sofia, Bulgaria. I'm interested in your case and the therapy of your desease. I'd like to know the full scheme of the therapy with prednisolon that your doctor applied to you. The reason I want that information is because I have one pationt with that diagnosis and doctors here do not want to treat her. It's very pitty but I want to do what I can for her. So if you can, give me also some coordinates (e_mail) of you doctor so he can tell me all about the treatmen (if he agrees).

Posted by BillyReyn
11 Jun 2009, 01:40 PM

I have had PCD since late 2006. Alert local doctoring from my internist & then a neurologist suspected, then diagnosed, it within a month after I frst sought medical help. I have been treated at/by the Mayo Clinic since then and still work full time. The succesful treatment for me has been 1 gram IV of methylprednisolone at varying intervals. I started with daily & am now monthly. When they experimented with taking me off the steroids, all my symptoms came back with a vengance. My symptoms include: feet are asleep 100% of the time, ataxia with voluntary muscles, myoclonic jerks, loss of appetite, taste changes, balance malfunction, fatigue, weakness, & lethargy. I expect no effect on longevity, but the long-term steroid treatment could have repercussions.

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General Info, perhaps useful

Created by BillyReyn | Last updated 13 Jul 2009, 09:38 PM


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