Oral Lichen Planus is an inflammatory condition affecting the lining of the mouth. It occurs most often on the inside of the cheeks, but can affect the gums, tongue, lips and other parts of the mouth. Occasionally oral lichen planus involves the throat or the esophagus.
I recently had a biopsy to confirm OLP. Mine is in a severe stage leaving me unable to eat most things and experiencing difficulty speaking. Pain is constant. The Dermatologist suggested I remove Glipizide ER for treating Diabetes II) from my medications, as it might cause the flare-up of this condition. I have taken several medications for the problems, but none have made it better. The Dr said he could treat it, so I guess he is taking it one step at a time. I want it over NOW! Has anyone taken medication that works to relieve the pain from the erosions?
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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