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Opitz BBB/G Syndrome

What is Opitz BBB/G Syndrome?

Opitz G/BBB Syndrome is a genetic disorder caracterized by wide-spaced eyes; and breathing problems and difficulty swallowing.

 

Opitz G/BBB Syndrome is a genetic disorder caracterized by wide-spaced eyes; and breathing problems and difficulty swallowing.
Acknowledgement of Opitz BBB/G Syndrome has not been added yet.
3.0http://www.orpha.net
Synonyms for Opitz BBB/G Syndrome has not been added yet.
Cause of Opitz BBB/G Syndrome has not been added yet.
Symptoms for Opitz BBB/G Syndrome has not been added yet.
Diagnosis of Opitz BBB/G Syndrome has not been added yet.
Diagnostic tests of Opitz BBB/G Syndrome has not been added yet
Treatments of Opitz BBB/G Syndrome has not been added yet.
Prognosis of Opitz BBB/G Syndrome has not been added yet.
Tips or Suggestions of Opitz BBB/G Syndrome has not been added yet.
References of Opitz BBB/G Syndrome has not been added yet.
Newly Diagnosed son with Opitz Syndrome Created by angelgirl41886
Last updated 29 Aug 2011, 01:07 PM

Posted by angelgirl41886
29 Aug 2011, 01:07 PM

My son who is 27 months was just recently diagnosed with opitz syndrome this has been a very rocky road for us he has been sick ever since he was born but only had a some of the symptoms of opitz so it was left undiagnosed instead we were sent to multiple specialists who kept telling us nothing was wrong with him and kept putting us through multiple experimental procedures to rule out other things.. I am sharing my story to see if anyone else can help me cope with his diagnosis because his doctors were unable to give us alot of information about his syndrome. He currently has a feeding tube in his stomach and has therapists coming to the home that are helping him. I am just so overwhelmed right now and im hoping our story may help others. Thank you, Crystal Hutchins

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Newly Diagnosed son with Opitz Syndrome

Created by angelgirl41886 | Last updated 29 Aug 2011, 01:07 PM


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