Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Olivopontocerebellar Atrophy

What is Olivopontocerebellar Atrophy?

Olivopontocerebellar Atrophy (OPCA) is a term used to define neuronal degeneration in the cerebellum, pontine nuclei, and inferior olivary nucleus.

 

Olivopontocerebellar Atrophy (OPCA) is a term used to define neuronal degeneration in the cerebellum, pontine nuclei, and inferior olivary nucleus.
Acknowledgement of Olivopontocerebellar Atrophy has not been added yet.
Prevalence Information of Olivopontocerebellar Atrophy has not been added yet.
Synonyms for Olivopontocerebellar Atrophy has not been added yet.
Cause of Olivopontocerebellar Atrophy has not been added yet.
Symptoms for Olivopontocerebellar Atrophy has not been added yet.
Diagnosis of Olivopontocerebellar Atrophy has not been added yet.
Diagnostic tests of Olivopontocerebellar Atrophy has not been added yet
Treatments of Olivopontocerebellar Atrophy has not been added yet.
Prognosis of Olivopontocerebellar Atrophy has not been added yet.
Tips or Suggestions of Olivopontocerebellar Atrophy has not been added yet.
References of Olivopontocerebellar Atrophy has not been added yet.
OPCA Created by tsipmor
Last updated 26 Apr 2011, 12:45 AM

Posted by tsipmor
26 Apr 2011, 12:45 AM

MY SISTER SEEMS TO HAVE OPCA. CAN ANYONE SHARE THEIR EXPERIENCE OR LET ME KNOW HOW SHE CAN COPE WITH THIS DISEASE? THANKS

Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

My sister's symptoms seems like she has OPCA.

 

Want to find out from people who has it or know someone that has it how to cope with this horrible disease
My father got OPCA about 3 years ago.

 

Now he speaks and walks hardly.

 

I'm so sad about there is no good treatment.
My mother-in-law has Olivopontocerebellar Atrophy and I am looking for a support community that can assist me in helping her while she deals with this difficult diagnosis.
My wife was diagnosed with Mitochondrial disease in January of 08 and in June of 08 she was diagnosed with OPCA based on a MRI or CAT scan. She is fifty six years old and is unable to walk anymore...
does anyone you know have this disease?
female with o.p.c.a.

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

OPCA

Created by tsipmor | Last updated 26 Apr 2011, 12:45 AM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.