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Nontuberculous Mycobacteria

What is Nontuberculous Mycobacteria?

Nontuberculous Mycobacteria is a bacteria that is found in water, some domestic and wild animals, and soil. NTM is a primary cause of respiratory disease in humans and is a leading cause of death in HIV/AIDS patients.

 

Nontuberculous Mycobacteria is a bacteria that is found in water, some domestic and wild animals, and soil. NTM is a primary cause of respiratory disease in humans and is a leading cause of death in HIV/AIDS patients.
Acknowledgement of Nontuberculous Mycobacteria has not been added yet.
3.0http://www.ntmhandbook.com/NTM_Facts.htm
Synonyms for Nontuberculous Mycobacteria has not been added yet.
Cause of Nontuberculous Mycobacteria has not been added yet.
Nontuberculous Mycobacteria and Tuberculosis both affect the lungs and the symptoms can often times be very similar. Sometimes the infection can spread to the brain, which can cause the patient to experience overall weakness, headaches, vision problems, and loss of balance.
Name Description
Fever Fever
Weight Loss Weight Loss
Lack of appetite Lack of appetite
Cough Cough
Night Sweats Night Sweats
Blood in the sputum Blood in the sputum
Loss of energy Loss of energy
Nontuberculous Mycobacteria can be very difficult to diagnose and a medical professional must be able to identify the specific type of NTM.
Diagnostic tests of Nontuberculous Mycobacteria has not been added yet
Treating NTM infections can be extremely difficult and may require multiple drugs. To avoid becoming resistant to the drugs, doctors often require their patients to take several different drugs, which may cause severe side effects. Patients must also be closely monitored during the entire process, which may be as long as two years.
Prognosis of Nontuberculous Mycobacteria has not been added yet.
Tips or Suggestions of Nontuberculous Mycobacteria has not been added yet.
References of Nontuberculous Mycobacteria has not been added yet.
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Community External News Link
Title Date Link
Community Resources
Title Description Date Link
Stop NTM Now

We are an online resource for Nontuberculous Mycobacteria (NTM). Our website will provide you with basic information about about NTMs, including symptoms, frequently asked questions, and methods of treatment.

03/20/2017
The NTM Handbook

The purpose of this website is to provide information about NTM to patients and their families. NTM is also known as atypical tuberculosis (Atypical TB) or mycobacteria other than tuberculosis (MOTT).

03/20/2017

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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