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Narcolepsy

What is Narcolepsy?

Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness.

 

Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness.
Acknowledgement of Narcolepsy has not been added yet.
49.0http://www.orpha.net
Synonyms for Narcolepsy has not been added yet.
Cause of Narcolepsy has not been added yet.
Symptoms for Narcolepsy has not been added yet.
Diagnosis of Narcolepsy has not been added yet.
Diagnostic tests of Narcolepsy has not been added yet
Treatments of Narcolepsy has not been added yet.
Prognosis of Narcolepsy has not been added yet.
Tips or Suggestions of Narcolepsy has not been added yet.
References of Narcolepsy has not been added yet.
Sharing with others Created by Westerg3
Last updated 15 Feb 2012, 09:24 AM

Posted by dzeldaz
15 Feb 2012, 09:24 AM

So sorry to hear that those close to you, and in a position to understand, are not there to support you. I guess for my kids it has been a way of life to which I was just able to attach a name. My husband calls me high-maintenance and I remind him I could live up to that! He is "high-maintenance" as well (sorry guys) as he is male. I like this forum as one can express the frustration involved with narcolepsy. Until if affected me, I did not understand it. There are some things best not shared with some people. I am not a proponent of ignorance, though in some cases, it works out very well Please don't let their resposes and reactions get you down.

Posted by dzeldaz
14 Feb 2012, 06:08 AM

Sara, you are fortunate to have been diagnosed so early in life. I had such a difficult time in high school (brief addiction to No-Doz) and college (I suffered stomach aches from eating Tic-Tacs and chewing gum to keep me awake in classes). I was not diagnosed until my late forties. Only my husband, children and a couple of extremely close friends know of my true diagnosis. I have not told work or other public outlets on the advice of my doctor who let me know I might have a difficult time. I was concerned that some friends might not let me drive their children out of ignorance. My odd hours, sleeplessness and sleepiness are explained as a "sleep disorder". I, too, do not have cataplexy. As far as the rest of my relatives, it has not been worth telling them. All I would hear is nonsense based on their perceived knowledge. They would all start playing doctor and any move I would make off the straight line would be blamed on narcolepsy. My children and husband are much more understanding. I have learned that sharing everything is not always a good idea. If I am tired or I feel like I am on the way out, my husband knows the look and I just go into another room and lie down. Some family members think I am "escaping" and a bit odd, but that is preferable to me than the alternative. I love my relatives, though I love my privacy and self-esteem more. It is time for some quality sleep!

How do you handle the sleepiness in the middle of a conversation? Created by dzeldaz
Last updated 12 Feb 2012, 07:49 AM

Posted by dzeldaz
12 Feb 2012, 07:49 AM

Thank you Westerg3. I have to be more aware. I think I can get through it and the next thing I know, I am asleep. This is especially true if I am on the phone with a friend who is a chatterbox. If I can be active and talk, I can stay awake. Constant listening puts me to sleep. The same happened in high school and college. I chewed a lot of gum to stay awake. I don't like to chew gum at home. I have not told anyone outside of my immediate family about the narcolepsy. I have told friends I have a sleep disorder. I wish I could relax on the couch when talking on the phone sometimes, but I guess I'll have to stick to activity as you have suggested. Thank you.

Posted by Westerg3
11 Feb 2012, 10:36 PM

Standing up and walking has helped me quite a bit. For people that know I have narcolepsy, I don't really have to explain. In situations where I don't want to explain, going to get a drink of water or going to the bathroom seems to work.

Posted by dzeldaz
22 Aug 2011, 10:23 AM

I still haven't figured out how to handle the sleepiness in the middle of a converstation. I've fallen asleep on the phone when I feel wide awake. I feel it coming and can't do anything about it. I've learned to tell my husband and children. (No cataplexy.) I don't tell many people as they are afraid of narcolepsy.

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Sharing with others

Created by Westerg3 | Last updated 15 Feb 2012, 09:24 AM

How do you handle the sleepiness in the middle of a conversation?

Created by dzeldaz | Last updated 12 Feb 2012, 07:49 AM


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