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What is Narcolepsy?

Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness.


Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness.
Acknowledgement of Narcolepsy has not been added yet.
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Diagnosis of Narcolepsy has not been added yet.
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Tips or Suggestions of Narcolepsy has not been added yet.
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Sharing with others Created by Westerg3
Last updated 15 Feb 2012, 09:24 AM

Posted by dzeldaz
15 Feb 2012, 09:24 AM

So sorry to hear that those close to you, and in a position to understand, are not there to support you. I guess for my kids it has been a way of life to which I was just able to attach a name. My husband calls me high-maintenance and I remind him I could live up to that! He is "high-maintenance" as well (sorry guys) as he is male. I like this forum as one can express the frustration involved with narcolepsy. Until if affected me, I did not understand it. There are some things best not shared with some people. I am not a proponent of ignorance, though in some cases, it works out very well Please don't let their resposes and reactions get you down.

Posted by dzeldaz
14 Feb 2012, 06:08 AM

Sara, you are fortunate to have been diagnosed so early in life. I had such a difficult time in high school (brief addiction to No-Doz) and college (I suffered stomach aches from eating Tic-Tacs and chewing gum to keep me awake in classes). I was not diagnosed until my late forties. Only my husband, children and a couple of extremely close friends know of my true diagnosis. I have not told work or other public outlets on the advice of my doctor who let me know I might have a difficult time. I was concerned that some friends might not let me drive their children out of ignorance. My odd hours, sleeplessness and sleepiness are explained as a "sleep disorder". I, too, do not have cataplexy. As far as the rest of my relatives, it has not been worth telling them. All I would hear is nonsense based on their perceived knowledge. They would all start playing doctor and any move I would make off the straight line would be blamed on narcolepsy. My children and husband are much more understanding. I have learned that sharing everything is not always a good idea. If I am tired or I feel like I am on the way out, my husband knows the look and I just go into another room and lie down. Some family members think I am "escaping" and a bit odd, but that is preferable to me than the alternative. I love my relatives, though I love my privacy and self-esteem more. It is time for some quality sleep!

How do you handle the sleepiness in the middle of a conversation? Created by dzeldaz
Last updated 12 Feb 2012, 07:49 AM

Posted by dzeldaz
12 Feb 2012, 07:49 AM

Thank you Westerg3. I have to be more aware. I think I can get through it and the next thing I know, I am asleep. This is especially true if I am on the phone with a friend who is a chatterbox. If I can be active and talk, I can stay awake. Constant listening puts me to sleep. The same happened in high school and college. I chewed a lot of gum to stay awake. I don't like to chew gum at home. I have not told anyone outside of my immediate family about the narcolepsy. I have told friends I have a sleep disorder. I wish I could relax on the couch when talking on the phone sometimes, but I guess I'll have to stick to activity as you have suggested. Thank you.

Posted by Westerg3
11 Feb 2012, 10:36 PM

Standing up and walking has helped me quite a bit. For people that know I have narcolepsy, I don't really have to explain. In situations where I don't want to explain, going to get a drink of water or going to the bathroom seems to work.

Posted by dzeldaz
22 Aug 2011, 10:23 AM

I still haven't figured out how to handle the sleepiness in the middle of a converstation. I've fallen asleep on the phone when I feel wide awake. I feel it coming and can't do anything about it. I've learned to tell my husband and children. (No cataplexy.) I don't tell many people as they are afraid of narcolepsy.

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Sharing with others

Created by Westerg3 | Last updated 15 Feb 2012, 09:24 AM

How do you handle the sleepiness in the middle of a conversation?

Created by dzeldaz | Last updated 12 Feb 2012, 07:49 AM


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