Microscopic Mite Infestation and Attack
What is Microscopic Mite Infestation and Attack ?
Last updated 30 Aug 2024, 09:18 AM
30 Aug 2024, 09:18 AM
Seeking Support and Awareness for Rare Dust Mite Acariasis
Hello everyone,
I am reaching out to this community in hopes of finding support and raising awareness about a rare and debilitating condition I am experiencing, which I believe to be a severe form of dust mite acariasis. My situation is unique and goes beyond typical allergy or dermatological issues. Here is a detailed account of my journey:
Initial Symptoms and Infestation:**
Over a year ago, I began experiencing unusual symptoms that progressively worsened. Despite vigorous daily cleaning, my home became extremely infested with microscopic acariform mites. These mites are not just present in my environment; they are entering my body 24/7, even when I am in public. They have completely taken over my food, making it difficult to eat at home. They also attach themselves to my father, who inadvertently brings them into the house from his daily activities.
**Physical and Neurological Symptoms:**
I first noticed a wound on my back that wasn't healing properly and felt movement in that area and throughout my body. My symptoms have since escalated to include:
- Almost complete loss of consciousness due to severe lightheadedness
- Intense headaches and fever
- Neck pain and chest pain
- Vision problems
- A sensation of spider webs blowing on my skin
- Hearing splitting and crunchy noises in my head, coinciding with the movement of the mites
I believe these symptoms may be indicative of neurological damage caused by the mites.
### Medical Documentation and Challenges
Despite multiple visits to emergency rooms at UMMC, St. Dominic, and Merit Health, I have not received the proper testing or diagnosis. My symptoms have often been dismissed as psychological, but I am certain that what I am experiencing is real and not a hallucination.
### Seeking Connection and Support
I am sharing my story to connect with others who might be experiencing similar issues and to raise awareness about this rare condition. If you or someone you know is dealing with similar symptoms, please reach out. Together, we can support each other and advocate for better recognition and treatment of this condition.
Thank you for taking the time to read my story. Your support and any information you can share would be greatly APPRECIATED.
Clinical Trials
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
- Complete the screening form.
- Review the informed consent.
- Answer the permission and data sharing questions.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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Microscopic Mite Infestation and Attack
Created by treyjohnson73 | Last updated 30 Aug 2024, 09:18 AM
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