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Marden-Walker Syndrome

What is Marden-Walker Syndrome?

Marden-Walker Syndrome is a rare disorder characterized by a distinct facial expression, a small or receding jaw, a cleft or high-arched palate, growth delay, bone joints in a fixed position and limited control of muscle movement.

 

Marden-Walker Syndrome is a rare disorder characterized by a distinct facial expression, a small or receding jaw, a cleft or high-arched palate, growth delay, bone joints in a fixed position and limited control of muscle movement.
Acknowledgement of Marden-Walker Syndrome has not been added yet.
Prevalence Information of Marden-Walker Syndrome has not been added yet.
Synonyms for Marden-Walker Syndrome has not been added yet.
Cause of Marden-Walker Syndrome has not been added yet.
limited control of muscle movement
Diagnosis of Marden-Walker Syndrome has not been added yet.
Diagnostic tests of Marden-Walker Syndrome has not been added yet
Treatments of Marden-Walker Syndrome has not been added yet.
Prognosis of Marden-Walker Syndrome has not been added yet.
Tips or Suggestions of Marden-Walker Syndrome has not been added yet.
References of Marden-Walker Syndrome has not been added yet.
mws Created by turkey
Last updated 8 Jan 2013, 03:16 PM

Posted by turkey
8 Jan 2013, 03:16 PM

why would anyone outside writing.My daughter was diagnosed MWS What awaits us in

marden walker syndrome Created by Lynette
Last updated 7 Nov 2009, 01:14 AM

Posted by chris1011981
7 Nov 2009, 01:14 AM

hi there im chris i was born with marden walker syndrome to how does it affect everyone else. i developed kidney failure and sleep appnea and undescended testes i also had hypersplasia ( urinate from two places) they removed both of my testes and replaced them with adult prostetic ones.. hence im infertile. my joints i cant straighten and i walk with an unsteady gait. im developing arthiritis in my knees can get quite sore sometimes when walking. i suffer from really bad dizzy spells sometimes (low blood pressure apparently) and all this to do with marden walker syndrome lol wow im 28 now and used to stop breathing for no reason until i grew out of that. if anybody has anymore information please could u email me at chris1011981@yahoo.co.uk im from the united kingdom. many thanks ps to mellan you have a beautiful country (america) been to florida and had the best time ever.. god bless you

Posted by Mellan
11 Aug 2009, 09:37 PM

Hi Lynette, You can reach me on Facebook. Just search MaryEllen Spencer. I'm in Virginia/DC

Posted by Lynette
6 Nov 2008, 07:01 PM

I am trying to contact the lady that has a daughter with marden walker syndrome both of my kids have mws my son aslo has dandy walker malformation Thanks Lynette Daniel 15 mws and dandy walker malformation Tiffany 12 on dec 9 mws

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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I am a 25 year old mother of two whose youngest child of 15 months is suspected to have marden walker syndrome and i am searching for any information on it.
marden walker syndrome sufferer i also have sleep appnea and have suffered kidney failure. lol life gets better dont it
My one yr old daughter was diagnosed with dandy walker malformation. Now the geneticist thinks she may also have marden walker syndrome. I kinda think so too after reading the symptoms. I would...
I have two kids with Marden walker syndrome My son also has dandy walker malformation

 

I am looking to met others with marden walker syndrome
I have two daughters, 26 and 29. My oldest was diagnosed with Marden-Walker Syndrome when she was 13. To date I have only spoken with one other mother and know of one more. Supposedly there are...

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mws

Created by turkey | Last updated 8 Jan 2013, 03:16 PM

marden walker syndrome

Created by Lynette | Last updated 7 Nov 2009, 01:14 AM


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