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Lemierre's Syndrome

What is Lemierre's Syndrome?

Lemierre's Syndrome is a rare disorder characterized by oropharyngeal infection, usually caused by Fusobacterium necrophorum.

 

Lemierre's Syndrome is a rare disorder characterized by oropharyngeal infection, usually caused by Fusobacterium necrophorum.
Acknowledgement of Lemierre's Syndrome has not been added yet.
Synonyms for Lemierre's Syndrome has not been added yet.
?unknown
Usually cases start with sore throat, fever, weakness, neck swelling and progresses to shortness of breath, chest pain, and possibly respiratory failure. Characteristic of the syndrome is septic blood clot formation in a jugular neck vein, with emboli frequently traveling into the lungs and possibly joints.
Fusobacterium found, blood clot found in jugular vein---along with previous symptoms found in patient
Diagnostic tests of Lemierre's Syndrome has not been added yet
depends on the severity of the syndrome---typically patients will be treated with high dosages for >1 month of antibiotics along with other various supportive agents
If caught early enough, there is an excellent prognosis.
Tips or Suggestions of Lemierre's Syndrome has not been added yet.
References of Lemierre's Syndrome has not been added yet.
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Community Resources
Title Description Date Link
Lemierre's Syndrome Fighters and Survivors

Facebook group---our own place to get support and share stories and experiences during and after LS. 390 members at current time (Sept 2010). Please join us! :)

03/20/2017

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I'm a 7+ year survivor of Lemierre's Syndrome. I love to connect with other and spread awareness. I'm also a respiratory therapist working in the MICU in a large hospital system.
My daughter was diagnosed with Lemierre's Syndrome this fall. We were lucky that it was caught and diagnosed relatively early.

 

 

Currently I am writing an article about this. I'm the...

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