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Kikuchi's Disease

What is Kikuchi's Disease ?

Kikuchi's disease is a rare non-cancerous enlargement of the lymph nodes.

 

Kikuchi's disease is a rare non-cancerous enlargement of the lymph nodes.
Acknowledgement of Kikuchi's Disease has not been added yet.
Prevalence Information of Kikuchi's Disease has not been added yet.
Synonyms for Kikuchi's Disease has not been added yet.
Cause of Kikuchi's Disease has not been added yet.
swollen lymph nodes, fever
Diagnosis of Kikuchi's Disease has not been added yet.
Diagnostic tests of Kikuchi's Disease has not been added yet
Treatments of Kikuchi's Disease has not been added yet.
Prognosis of Kikuchi's Disease has not been added yet.
Tips or Suggestions of Kikuchi's Disease has not been added yet.
References of Kikuchi's Disease has not been added yet.
Kikuchi scared Created by Rmullis
Last updated 19 May 2014, 03:38 PM

Posted by Rmullis
19 May 2014, 03:38 PM

Hi I'm trying to reach out to anyone who has also been diagnosed with Kikuchi disease. See what they have gone through and any support with this. Unfortunately my doctors can't offer much because this is so rare. If anyone has anything to offer or would want to discuss symptoms or anything please reach out to me thanks.

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Kikuchi scared

Created by Rmullis | Last updated 19 May 2014, 03:38 PM


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