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Kienbock's Disease

What is Kienbock's Disease?

Kienbock's disease is a wrist disorder caused by the breakdown of the lunate bone.

 

Kienbock's disease is a wrist disorder caused by the breakdown of the lunate bone.
Acknowledgement of Kienbock's Disease has not been added yet.
Prevalence Information of Kienbock's Disease has not been added yet.
Synonyms for Kienbock's Disease has not been added yet.
Cause of Kienbock's Disease has not been added yet.
Symptoms for Kienbock's Disease has not been added yet.
Diagnosis of Kienbock's Disease has not been added yet.
Diagnostic tests of Kienbock's Disease has not been added yet
Treatments of Kienbock's Disease has not been added yet.
Prognosis of Kienbock's Disease has not been added yet.
Tips or Suggestions of Kienbock's Disease has not been added yet.
References of Kienbock's Disease has not been added yet.
Daughter newly dx Created by Mumahen
Last updated 23 Feb 2013, 10:01 PM

Posted by Mumahen
23 Feb 2013, 10:01 PM

Does anyone have advice on the best treatment plans? Has anyone had the surgery and how did recovery go?

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Daughter newly dx

Created by Mumahen | Last updated 23 Feb 2013, 10:01 PM


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