Harlequin syndrome is a rare disorder characterized by flushing and sweating on only one side of the face typically induced by heat or exercise.
I have Harlequins and have been to see a Neurologist. He ordered a MRI of the brain and found nothing abnormal. He was aware of the one sided sweating but never gave it the name of Harlequin Syndrome. He told me the condition is almost always benign, only rarely is it caused by a tumor. Recently I saw a Neurosurgeon who said that the first Dr had the MRI done on the wrong part of my body--it should have been of the neck and upper chest. The consensus seems to be that it is a problem of the sympathetic nervous system, that the side that turns red is the normal side. I read all the information I could find on the web, which amounted to 5 or 6 articles that I found by using every search engine I've ever heard of. Also, I took pictures of myself while I was 1/2 red to show to my doctor. It is very exciting to actually find a community of people with this same weird and embarrassing problem.
One topic is:Harlequin Syndrome/ Heart/ Respiration/ Help. You can find more info by searching: red/sweating on one side face, half face, and other combinations. You can also go to: http://rarediseases.info.nih.gov/Default.aspx and click on the GARD info. I would say going to a Neuro. would probably get things started. FEW and I mean FEW people have this because of something serious. I have been fighting this battle for a long time now and they can not find anything wrong yet. There are a few more tests that still need to be done, but I'm taking a break from all the testing again. Through all my research, the BEST Neuro's to get appts with are ones at a teaching or University hospital as they have a team that can work together and are most up to date on the latest findings. Hope this helps.
Where on Medhelp.org do I find that thread? I couldn't find much information. I would love to talk to others with harlequin syndrome. I'm still trying to get my Dr. to believe it's a real problem. Yesterday I spent about 30 minutes outdoors cleaning some floor mats and I got SO hot and red on one side, it's simply embarrassing. I don't even want to exercise anymore, it's so noticeable. I'm wondering if I need to see a neurologist.
My friend who is like my second mom has found out she has Harlequin Syndrome- she is scared kind of in the dark and lacks internet access - I think she needs someone who is going through this to talk to and reassure her. I love her. I am far away and I also lack the knowledge to ease her mind.She is going in for a battery of tests on Friday -I am willing to give someone my personal email so I can give you her phone #- Thanks Tonia
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