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Harlequin Syndrome

What is Harlequin Syndrome?

Harlequin syndrome is a rare disorder characterized by flushing and sweating on only one side of the face typically induced by heat or exercise.

 

Harlequin syndrome is a rare disorder characterized by flushing and sweating on only one side of the face typically induced by heat or exercise.
Acknowledgement of Harlequin Syndrome has not been added yet.
Prevalence Information of Harlequin Syndrome has not been added yet.
Synonyms for Harlequin Syndrome has not been added yet.
Cause of Harlequin Syndrome has not been added yet.
Symptoms for Harlequin Syndrome has not been added yet.
Diagnosis of Harlequin Syndrome has not been added yet.
Diagnostic tests of Harlequin Syndrome has not been added yet
Treatments of Harlequin Syndrome has not been added yet.
Prognosis of Harlequin Syndrome has not been added yet.
Tips or Suggestions of Harlequin Syndrome has not been added yet.
References of Harlequin Syndrome has not been added yet.
Could other symptoms be related to this disease? Created by maltesesd
Last updated 20 Nov 2009, 04:04 AM

Posted by suzique
20 Nov 2009, 04:04 AM

I have Harlequins and have been to see a Neurologist. He ordered a MRI of the brain and found nothing abnormal. He was aware of the one sided sweating but never gave it the name of Harlequin Syndrome. He told me the condition is almost always benign, only rarely is it caused by a tumor. Recently I saw a Neurosurgeon who said that the first Dr had the MRI done on the wrong part of my body--it should have been of the neck and upper chest. The consensus seems to be that it is a problem of the sympathetic nervous system, that the side that turns red is the normal side. I read all the information I could find on the web, which amounted to 5 or 6 articles that I found by using every search engine I've ever heard of. Also, I took pictures of myself while I was 1/2 red to show to my doctor. It is very exciting to actually find a community of people with this same weird and embarrassing problem.

Posted by maltesesd
1 Jul 2009, 12:17 AM

One topic is:Harlequin Syndrome/ Heart/ Respiration/ Help. You can find more info by searching: red/sweating on one side face, half face, and other combinations. You can also go to: http://rarediseases.info.nih.gov/Default.aspx and click on the GARD info. I would say going to a Neuro. would probably get things started. FEW and I mean FEW people have this because of something serious. I have been fighting this battle for a long time now and they can not find anything wrong yet. There are a few more tests that still need to be done, but I'm taking a break from all the testing again. Through all my research, the BEST Neuro's to get appts with are ones at a teaching or University hospital as they have a team that can work together and are most up to date on the latest findings. Hope this helps.

Posted by arbormom
29 Jun 2009, 05:20 PM

Where on Medhelp.org do I find that thread? I couldn't find much information. I would love to talk to others with harlequin syndrome. I'm still trying to get my Dr. to believe it's a real problem. Yesterday I spent about 30 minutes outdoors cleaning some floor mats and I got SO hot and red on one side, it's simply embarrassing. I don't even want to exercise anymore, it's so noticeable. I'm wondering if I need to see a neurologist.

View Full Thread (3 more posts)
Anyone willing to make a phone call Created by tryingtohelpafriend
Last updated 14 May 2009, 01:15 PM

Posted by tryingtohelpafriend
14 May 2009, 01:15 PM

My friend who is like my second mom has found out she has Harlequin Syndrome- she is scared kind of in the dark and lacks internet access - I think she needs someone who is going through this to talk to and reassure her. I love her. I am far away and I also lack the knowledge to ease her mind.She is going in for a battery of tests on Friday -I am willing to give someone my personal email so I can give you her phone #- Thanks Tonia

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Could other symptoms be related to this disease?

Created by maltesesd | Last updated 20 Nov 2009, 04:04 AM

Anyone willing to make a phone call

Created by tryingtohelpafriend | Last updated 14 May 2009, 01:15 PM


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