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Gardner's Syndrome

What is Gardner's Syndrome?

Gardner's Syndrome is a rare genetic disorder characterized by multiple polyps and tumors in and around the colon.

 

 

Gardner's Syndrome is a rare genetic disorder characterized by multiple polyps and tumors in and around the colon.

 

Acknowledgement of Gardner's Syndrome has not been added yet.
Synonyms for Gardner's Syndrome has not been added yet.
Genetic disorder with one parent with the Syndrome.
Multiple cysts/tumors. Growing extra teeth. Various types of cysts and tumors.
Diagnosis of Gardner's Syndrome has not been added yet.
Diagnostic tests of Gardner's Syndrome has not been added yet
Treatments of Gardner's Syndrome has not been added yet.
Prognosis of Gardner's Syndrome has not been added yet.
Tips or Suggestions of Gardner's Syndrome has not been added yet.
References of Gardner's Syndrome has not been added yet.
Help Created by theresacurry
Last updated 27 Feb 2013, 04:44 PM

Posted by theresacurry
27 Feb 2013, 04:44 PM

can you tell me how rest of you handle this

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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

Need any advise help with this damn illness VA useless. Pleaase help MAC
Spouse of individual suspectedcof having SCLS.
I am a 26 year old female who was diagnosed with Gardner's Syndrome fairly recently. However, I was originally diagnosed with FAP when I was 12 years old, after my mother passed away from Colon...
I am the mother of a 9 yr old girl diagnosed with Gardners Syndrome of FAP and the friend of her biological dad whom she inherited the disease from. I am struggling to find resources, drs and...
* I became real sick in 2007 working as a contract manager for our government Dod army navy doe nasa ect in October 2012 I had my colon and part of my rectum taken out I was in a septic stage 4...
I am a 43 mother of 4 boys, with my husband Billy, who in Janurary was. diagnosed with Gardner/Diamond Syndrome.
I am a mother a sister and aunt. I have a twin sister who is my other half to my whole. I need to help her find answers to her questions about her Child.

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Help

Created by theresacurry | Last updated 27 Feb 2013, 04:44 PM


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