Fahr’s Syndrome is a rare, genetic neurological disorder characterized by abnormal deposits of calcium in areas of the brain that control movement.
Hi. My friend was initially diagnosed with Fahr's in October after a series of fits and CT scan. This has now been changed to http://en.wikipedia.org/wiki/Pseudopseudohypoparathyroidism and he is seeking help.
Hello, My name is Brigitte and I am really confused if I have this disease or not. The CT scan says yes and I may have some symptoms or are they of other illnesses? I will see a neurologist in 2 weeks. I really would like detailed symptoms from real people and not abstracts or case studies. If anyone would care to share i'd appreciate it.
Hi I'm 36 year old female, I have no symptoms of note. A week and half ago I was working in my storage room and was hit on my nose. So protocol is CT Scan of sinuses. After that the radiologist stated I need to have a full brain CT Scan. I did the results devastated me. It's dense and a lot of it. Looking back at family members I discover two of my three uncles passed with this then my dad as well. The good news I guess is my grandmother died at 77 with it, the uncles died between 55-65 years of age. I've not found any experts for this disease, which is discouraging.
Hi Sonny, my mother was just diagnosed and I will be tested soon. I am in my 50\s and have suffered with leg tremors for about 15 years, they could not find the cause of my parkinsonism, but I do have severe osteoarthritis throughout my spine.. Fortunately I have not had any issues with my short term memory, my main issues are movement disorder and mobility issues. I do also suffer with mild OCD and my vitamin D levels are very low. I have read that these are also associated with Fahrs Syndrome. I cant wait to be tested! Finally after all these years, I might find out the source of my mobility problem. I am excited.
Hello there, I see there are a few other members besides myself w/ this condition. I thought maybe we can introduce ourselves and say a little about how it affects you. My name is Sonny, I'm 30 yrs old and was diagnosed when I was 21 but started seeing a difference around 27... I am forgetful a lot, my short term memory is really bad that affects everyday living.
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