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Ehlers-Danlos Syndrome Type 3

What is Ehlers-Danlos Syndrome Type 3?

Ehlers-Danlos Syndrome Type 3 is a rare genetic disorder caused by an autosomal dominant mechanism.

 

Ehlers-Danlos Syndrome Type 3 is a rare genetic disorder caused by an autosomal dominant mechanism.
Acknowledgement of Ehlers-Danlos Syndrome Type 3 has not been added yet.
12.5http://www.orpha.net
Synonyms for Ehlers-Danlos Syndrome Type 3 has not been added yet.
Cause of Ehlers-Danlos Syndrome Type 3 has not been added yet.
Symptoms for Ehlers-Danlos Syndrome Type 3 has not been added yet.
Diagnosis of Ehlers-Danlos Syndrome Type 3 has not been added yet.
Diagnostic tests of Ehlers-Danlos Syndrome Type 3 has not been added yet
Treatments of Ehlers-Danlos Syndrome Type 3 has not been added yet.
Prognosis of Ehlers-Danlos Syndrome Type 3 has not been added yet.
Tips or Suggestions of Ehlers-Danlos Syndrome Type 3 has not been added yet.
References of Ehlers-Danlos Syndrome Type 3 has not been added yet.
Hello my follow Zebras Created by InfernoFire
Last updated 8 Aug 2014, 05:33 PM

Posted by eulalia
8 Aug 2014, 05:33 PM

Hello. That's great you got the diagnosis so young - sometimes people go through years or even decades of incorrect or ambiguous diagnosis. Do you use any other online groups? Here's are some links to "active groups":http://www.pinterest.com/OREDS/forums-support-eds-ehlers-danlos-syndrome/. Lot's of other info linked from the "home page":http://www.pinterest.com/OREDS/ too. What's on your mind today?

Posted by lancastermtn
21 Jul 2014, 06:00 AM

I have EDS type III with cross over of others. I look forward to discussing daily life with this ever morphing disorder. Each day presents new challenges and learning new ways to adapt so EDS doesn't rule my life. It's very frustrating and hard on my family members to see me in so much pain. Have you read The spoon theory yet? Google it or go to...www.idontlooksick.com I believe. Great articles.

Posted by InfernoFire
30 May 2014, 03:59 AM

Hey I am Jess I am 23 and I have suspected type 3 and 4 Ehlers Danlos Syndrome. I am looking for other sufferers to chat with and talk about the experiences of this frustrating disorders.

For Doux Created by kaycee
Last updated 19 Feb 2011, 05:15 PM

Posted by kaycee
19 Feb 2011, 05:15 PM

above message was for doux..kaycee

Posted by kaycee
19 Feb 2011, 05:14 PM

I would like to ask you some questions if you come back to the sight,,my family members have ehlers danlos type symptoms but we are also being evaluated for andersen tawil syndrome another condition related to chromosome 17..You seem to have some of the facial features of andersen tawil

Hello Created by kaycee
Last updated 29 Sep 2009, 02:21 AM

Posted by kaycee
29 Sep 2009, 02:21 AM

Hello everyone!! How is everyone. No one has started a discussion yet so I thought i would get you guys going and ask how everyone found out about ehlers danlos and perhaps how you were diagnosed,, dont be afraid to post questions and ask for input from others as that is why most of us are here!! kaycee i have aquestion for doux if he comes back!!

Community External News Link
Title Date Link
Community Resources
Title Description Date Link
Ehlers Danlos National Foundation

Ehlers Danlos National Foundation

03/20/2017
Ehlers-Danlos Syndrome, Hypermobility Type

GeneTests description for EDS III.

03/20/2017

Clinical Trials


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Enrolling is easy.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Hello my follow Zebras

Created by InfernoFire | Last updated 8 Aug 2014, 05:33 PM

For Doux

Created by kaycee | Last updated 19 Feb 2011, 05:15 PM

Hello

Created by kaycee | Last updated 29 Sep 2009, 02:21 AM


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