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Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome

What is Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome?

Ectrodactyly-ectodermal dysplasia-cleft syndrome is a rare disorder characterized by ectrodactyly, ectodermal dysplasia, and facial clefting.

 

Ectrodactyly-ectodermal dysplasia-cleft syndrome is a rare disorder characterized by ectrodactyly, ectodermal dysplasia, and facial clefting.
Acknowledgement of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Prevalence Information of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Synonyms for Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Cause of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Symptoms for Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Diagnosis of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Diagnostic tests of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet
Treatments of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Prognosis of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
Tips or Suggestions of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
References of Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome has not been added yet.
ectodermal dysplasia Created by jndm
Last updated 9 Feb 2013, 04:57 AM

Posted by bcasteel0001
9 Feb 2013, 04:57 AM

Thank you, I put in a request to join your group on facebook!

Posted by Rebelheart70
9 Feb 2013, 04:18 AM

Hello everyone! My name is Mario and I'm the translation responsable for the p63 EEC International association based in Italy. Please feel free visiting our website www.sindrome-eec.it . We are here for you and we are glad to help you answering all your questions. If you want to contact us, please write to mario.adamo@bluewin.ch or presidenza-international@sindrome-ecc.it . Like I've said, we would be glad to hear from you. Peace and love <3

Posted by bcasteel0001
8 Feb 2013, 04:10 AM

I noticed that it has been awhile since you have gotten on this site i am hoping that you are still current... my granddaughter was born Jan 16th and even tho i am in the nursing field i had never heard of ECC syndrome maybe someone can enlighten me and the trials and tribulations of this rare issue.

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ectodermal dysplasia

Created by jndm | Last updated 9 Feb 2013, 04:57 AM


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