Diabetes mellitus type 1
What is Diabetes mellitus type 1?
Diabetes mellitus type 1 is an autoimmune disease characterized by the permanent destruction of insulin-producing beta cells of the pancreas.
Last updated 14 Jul 2015, 03:46 PM
14 Jul 2015, 03:46 PM
Hi everyone, My name is Alex and I'm new to this forum. I'm a 26-yo female type 1 diabetic, diagnosed at the age of 7. I'm currently on insulin injections of Humalog and Lantus, and use a Dexcom CGM as well as fingersticks to monitor my blood sugar. I would consider myself overall a ""healthy"" diabetic for my age. I'm very careful about watching what I eat, although I do have a sweet tooth and tend to indulge every now and then (especially on dark chocolate). I've had one seizure in my life due to low blood sugar and have frequent lows because I try to maintain tight control. I'm also very active and try to exercise as often as I can, whether it's walking, biking, standing at my desk and moving around, stretching, doing yoga, etc. I currently have an H1Ac of 6.5 and am 5'3"" and ~120 lbs. I'm currently back in school to become a Registered Dietitian and eventually a CDE. I'm very interested in learning all I can about how to best take care of myself and control this disease. I used to work in the Music Industry and had a couple years of poor health due to stress, varied meal times, late nights, etc. I decided to change my career to regain control of my health and diabetes. So far, it's been a good change. Even though this all seems good and well on the surface, I still feel like I could do way better with managing my diabetes. I know that it's impossible to be ""perfect"" with this disease, but I still feel like I have wayyyy too many blood sugar fluctuations that affect my day-to-day activities. I also feel like my memory and personality are very affected by my blood sugar. I have a hard time remembering things (and I'm only 26!) and I have frequent mood swings. Also, I feel like I have a hard time connecting with other people and just socializing in general bc I'm constantly thinking about my blood sugar and how I'm doing/feeling... So, I'm just wondering if any of you have any comments about this and/or would want to share your own health status, background and/or diabetes care. I'd love to hear what others are doing with T1D and how it affects your day-to-day. ~A
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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
- Complete the screening form.
- Review the informed consent.
- Answer the permission and data sharing questions.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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Created by Achez236 | Last updated 14 Jul 2015, 03:46 PM
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