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Dandy-Walker Syndrome

What is Dandy-Walker Syndrome?

Dandy-Walker Syndrome is a rare congenital brain malformation.


Dandy-Walker Syndrome is a rare congenital brain malformation.
Acknowledgement of Dandy-Walker Syndrome has not been added yet.
Synonyms for Dandy-Walker Syndrome has not been added yet.
Cause of Dandy-Walker Syndrome has not been added yet.
There are several symptoms that affect people with Dandy-Walker Syndrome.
Name Description
Slow motor development Slow motor development
Enlargement of the skull Enlargement of the skull
Unsteadiness Unsteadiness
Lack of muscle coordination Lack of muscle coordination
Increased head circumference Increased head circumference
Abnormal breathing patterns Abnormal breathing patterns
Diagnosis of Dandy-Walker Syndrome has not been added yet.
Diagnostic tests of Dandy-Walker Syndrome has not been added yet
Treatments of Dandy-Walker Syndrome has not been added yet.
Prognosis of Dandy-Walker Syndrome has not been added yet.
Tips or Suggestions of Dandy-Walker Syndrome has not been added yet.
References of Dandy-Walker Syndrome has not been added yet.
daily variations Created by kmatokov
Last updated 13 Aug 2008, 01:55 PM

Posted by kmatokov
13 Aug 2008, 01:55 PM

question is: is normal to see, child has fiew day when all sems to be relative normal, and another 2-3 day when it can not walk trougt obstacles, drops on clear ground, speak is not so unersteandible. in tehnical speak we can say like empty battery.... is posible to say that can be chemical (or what) variation which can be treated and healed ? ...fix the good days. for me the variation is hope for beter (no?) sory for my bad english, i'hope was understeadible ;-) dad

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

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daily variations

Created by kmatokov | Last updated 13 Aug 2008, 01:55 PM


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