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Congenital Dyserythropoietic Anemia

What is Congenital Dyserythropoietic Anemia?

Congenital Dyserythopoietic Anemia is a rare genetic blood disorder.

 

Congenital Dyserythopoietic Anemia is a rare genetic blood disorder.
Acknowledgement of Congenital Dyserythropoietic Anemia has not been added yet.
1.0http://www.orpha.net
Synonyms for Congenital Dyserythropoietic Anemia has not been added yet.
Cause of Congenital Dyserythropoietic Anemia has not been added yet.
Symptoms for Congenital Dyserythropoietic Anemia has not been added yet.
Diagnosis of Congenital Dyserythropoietic Anemia has not been added yet.
Diagnostic tests of Congenital Dyserythropoietic Anemia has not been added yet
Treatments of Congenital Dyserythropoietic Anemia has not been added yet.
Prognosis of Congenital Dyserythropoietic Anemia has not been added yet.
Tips or Suggestions of Congenital Dyserythropoietic Anemia has not been added yet.
References of Congenital Dyserythropoietic Anemia has not been added yet.
CDA Type 1 Created by Marty
Last updated 18 May 2012, 02:08 PM

Posted by Woodworj1
18 May 2012, 02:08 PM

Hi there, we have a group in Yahoo Groups too of which everyone has type 2 with the exception of us 2 Canadians :P If you look for CDA (spelled out) support group you'll find us which is much more active :) Cheers, Jessica

Posted by dvlnts
18 May 2012, 08:04 AM

My best wishes goes out to you. i have CDA type 2 wich is more common then then type 1.

Posted by Marty
7 Mar 2012, 03:29 AM

Hi Ashleigh, Thank you for replying. I told my daughter about you today and will send you her email as well. She was excited to hear about you. We have all done some research on the disorder but like you say there are not many papers published on CDA 1. No one in the hospital home had ever heard of it. Greyson was diagnosed by the German Registry sometime in Dec. Some tests were done in Vancouver and another sample of bone marrow went to the Mayo clinic, which came back neg. for cancer. He had a very rough beginning but is now progressing very well and his Drs. are amazed. He is having Interferon injections 3X per week. He has has numerous blood transfusions but went 6 weeks before needing one about 3 weeks ago. From birth it was every 10 to 12 days. I'm sure you have lots to share and I really appreciate your reply and offer of help and support. Will send you an email and photo now. Marty

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Visit sanfordresearch.org/CoRDS to enroll.

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CDA Type 1

Created by Marty | Last updated 18 May 2012, 02:08 PM


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