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Cogan Syndrome

What is Cogan Syndrome?

Cogan Syndrome is a rare disorder characterized by recurrent inflammation of the eye and sometimes fever, fatigue, and weight loss, episodes of dizziness, and hearing loss.

 

Cogan Syndrome is a rare disorder characterized by recurrent inflammation of the eye and sometimes fever, fatigue, and weight loss, episodes of dizziness, and hearing loss.
Acknowledgement of Cogan Syndrome has not been added yet.
200.0http://ec.europa.eu/health/ph_threats/non_com/docs/rdnumbers.pdf
Synonyms for Cogan Syndrome has not been added yet.
Cause of Cogan Syndrome has not been added yet.
Symptoms for Cogan Syndrome has not been added yet.
Diagnosis of Cogan Syndrome has not been added yet.
Diagnostic tests of Cogan Syndrome has not been added yet
Treatments of Cogan Syndrome has not been added yet.
Prognosis of Cogan Syndrome has not been added yet.
Tips or Suggestions of Cogan Syndrome has not been added yet.
References of Cogan Syndrome has not been added yet.
NEW TO COGANS FORUM. Created by ChrisHughes
Last updated 8 Jun 2012, 01:40 PM

Posted by ChrisHughes
8 Jun 2012, 01:40 PM

*HI, I HAVE NOT AS YET BEEN DIAGNOSED WITH COGANS BUT I HAVE HAD MENIERER'S FOR17 YEARS NOW AND HAVE LOST MY HEARING IN MY LEFT EAR AND MOST IN MY RIGHT. I HAVE NOW HAD A BONE ANCHORED HEARING AID FITTED RECENTLY AND HOPE THAT THIS WORKS FOR ME. JUST BEFORE MY MENIERER'S WAS DIAGNOSED MY SIGHT STARTED TO GO AS WELL, I EXPERIENCED SEERING HOT PAIN IN MY EYE AND IT LASTED FOR WEEKS AT A TIME AND NOTHING SEEMED TO STOP THIS CONTINUAL PAIN. I HAVE FOR THE PAST 6 YEARS BEEN TELLING THE MEDICAL PROFESSION THAT I FELT THAT THE TWO THINGS WERE RELATED AND THEY DISMISSED IT WITHOUT ANOTHER THOUGHT; AND NOW I HAVE DONE SO MUCH RESEARCH ON COGANS I AM CONVINCED THAT THIS IS THE CAUSE OF MY SIGHT LOSS AND HAVE MENTIONED IT TO VARIOUS CONSULTANTS AND MY OWN GP AND THEY FEEL THAT I HAVE THE RIGHT ANSWER WHICH MOST ADMIT THEY HADNT THOUGHT ABOUT THE TWO THINGS BEING RELATED. IT WILL BE GOOD FOR A DIAGNOSIS. WHAT I WOULD LIKE TO KNOW IS THOSE OF YOU WHO HAVE BEEN DIANOSED WHAT SORT OF TESTS DO YOU HAVE TO SATISFY THE DOCTORS THAT IT IS COGANS. I HOPE THAT THERE ARE SOME PEOPLE OUT THERE WHO WILL ANSWER THIS FOR ME.

Looking for others Created by slmason
Last updated 26 Aug 2010, 08:41 PM

Posted by slmason
26 Aug 2010, 08:41 PM

After 9 years with a Meniere's Disease diagnosis, now I have been introduced to Cogan's Syndrome as a possible change of diagnosis. The inner ear symptoms of Meniere's and Cogan's apparently are the same. I have total hearing loss both ears since 2005, and an unsuccessful cochlear implant due to fibrous scar tissue in the cochlea (preventing total insertion of the electrode array). Now I have had a "stroke" in my right eye, damaging the optic nerve with accompanying vision loss. My blood work shows that I have inflammation elsewhere in my body, but rather than biopsy every organ, including my brain, I am starting on Cellcept (along with prednisone) as an immune suppresant. I am trying to preserve the rest of my vision and prevent future strokes. However the tradeoff of long-term immunity suppression is difficult to manage. I go once a month for tests to determine organ damage, cancer or other complications. I am looking for other people with experience in this process. Anybody out there?

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NEW TO COGANS FORUM.

Created by ChrisHughes | Last updated 8 Jun 2012, 01:40 PM

Looking for others

Created by slmason | Last updated 26 Aug 2010, 08:41 PM


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