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Chronic Lyme Disease

What is Chronic Lyme Disease?

Chronic Lyme Disease occurs in patients who have completed a course of antibiotic treatment for Lyme Disease, yet continue to have symptoms such as severe fatigue, sleep disturbance, and cognitive difficulties.

 

Chronic Lyme Disease occurs in patients who have completed a course of antibiotic treatment for Lyme Disease, yet continue to have symptoms such as severe fatigue, sleep disturbance, and cognitive difficulties.
Acknowledgement of Chronic Lyme Disease has not been added yet.
Prevalence Information of Chronic Lyme Disease has not been added yet.
Synonyms for Chronic Lyme Disease has not been added yet.
Cause of Chronic Lyme Disease has not been added yet.
Symptoms for Chronic Lyme Disease has not been added yet.
Diagnosis of Chronic Lyme Disease has not been added yet.
Diagnostic tests of Chronic Lyme Disease has not been added yet
Treatments of Chronic Lyme Disease has not been added yet.
Prognosis of Chronic Lyme Disease has not been added yet.
Tips or Suggestions of Chronic Lyme Disease has not been added yet.
References of Chronic Lyme Disease has not been added yet.
Refer to Disorder Resources for article on Lyme Disease Diagnosis and Treatment. Created by shannon.ashoori
Last updated 24 Aug 2020, 04:53 AM

What State or Province are you from? Created by TspineSryinx
Last updated 13 Oct 2014, 08:42 AM

Posted by TspineSryinx
13 Oct 2014, 08:42 AM

So, I know I'm not alone and figured I would start a topic in this community..... I'm from Michigan...Was diagnosed with MS in 2003, very violent and painful year, MS treatment turned out to be extremely detrimental and almost killed me. Still home bound, recently diagnosed with MTHFR, which is a gene defect making fighting infection very difficult. And, finally, I somehow ended up with a thoracic sryinx, which has been ignored since 2003, but is apparently considered a neural tube defect.....common with MTHFR. All of these different conditions have almost identical symtoms, so 12 years later, I'm still fighting and on a health quest.... So, welcome all you Lyme Suffering, remember to keep up the fight, okay? Stop in and say "Hi" and where your are from, okay?

Community External News Link
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Chronic Lyme disease is a rare, but serious condition — here's how to know if you have it 08/24/2020
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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Master's degree in human Nutrition

 

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PhD candidate in health science
54 year old female with recurring & chronic lyme disease
I'm 29 years old and I was diagnosed with Lyme disease in 2000. It has went dormant and came back for the third time. I am now experiencing what it's like to have chronic Lyme. It is very...
I am an active Management Consultant in the Metro Washington DC area. I have a wonderful wife and 3 grown children with 4 grandchildren and 12 year old twins. I love soccer and motorcycle riding...

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What State or Province are you from?

Created by TspineSryinx | Last updated 13 Oct 2014, 08:42 AM


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