Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Chronic Lyme Disease

What is Chronic Lyme Disease?

Chronic Lyme Disease occurs in patients who have completed a course of antibiotic treatment for Lyme Disease, yet continue to have symptoms such as severe fatigue, sleep disturbance, and cognitive difficulties.

 

Chronic Lyme Disease occurs in patients who have completed a course of antibiotic treatment for Lyme Disease, yet continue to have symptoms such as severe fatigue, sleep disturbance, and cognitive difficulties.
Acknowledgement of Chronic Lyme Disease has not been added yet.
Prevalence Information of Chronic Lyme Disease has not been added yet.
Synonyms for Chronic Lyme Disease has not been added yet.
Cause of Chronic Lyme Disease has not been added yet.
Symptoms for Chronic Lyme Disease has not been added yet.
Diagnosis of Chronic Lyme Disease has not been added yet.
Diagnostic tests of Chronic Lyme Disease has not been added yet
Treatments of Chronic Lyme Disease has not been added yet.
Prognosis of Chronic Lyme Disease has not been added yet.
Tips or Suggestions of Chronic Lyme Disease has not been added yet.
References of Chronic Lyme Disease has not been added yet.
What State or Province are you from? Created by TspineSryinx
Last updated 13 Oct 2014, 08:42 AM

Posted by TspineSryinx
13 Oct 2014, 08:42 AM

So, I know I'm not alone and figured I would start a topic in this community..... I'm from Michigan...Was diagnosed with MS in 2003, very violent and painful year, MS treatment turned out to be extremely detrimental and almost killed me. Still home bound, recently diagnosed with MTHFR, which is a gene defect making fighting infection very difficult. And, finally, I somehow ended up with a thoracic sryinx, which has been ignored since 2003, but is apparently considered a neural tube defect.....common with MTHFR. All of these different conditions have almost identical symtoms, so 12 years later, I'm still fighting and on a health quest.... So, welcome all you Lyme Suffering, remember to keep up the fight, okay? Stop in and say "Hi" and where your are from, okay?

Community External News Link
Title Date Link
Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

Master's degree in human Nu...
54 year old female with rec...
I'm 29 years old and I was ...
I am an active Management C...

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

What State or Province are you from?

Created by TspineSryinx | Last updated 13 Oct 2014, 08:42 AM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.