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Chromosome 22 Ring

What is Chromosome 22 Ring?

Chromosome 22 Ring is a rare disorder characterized by abnormalities of chromosome 22.

 

Chromosome 22 Ring is a rare disorder characterized by abnormalities of chromosome 22.
Prevalence Information of Chromosome 22 Ring has not been added yet.
Synonyms for Chromosome 22 Ring has not been added yet.
Cause of Chromosome 22 Ring has not been added yet.
Symptoms for Chromosome 22 Ring has not been added yet.
Diagnosis of Chromosome 22 Ring has not been added yet.
Diagnostic tests of Chromosome 22 Ring has not been added yet
Treatments of Chromosome 22 Ring has not been added yet.
Prognosis of Chromosome 22 Ring has not been added yet.
Tips or Suggestions of Chromosome 22 Ring has not been added yet.
References of Chromosome 22 Ring has not been added yet.
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Community Resources
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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

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Community User List

My name is Daniel Shockley and was diagnosed w/Attenuated Familial Adenomatous Polyposis (AFAP) in 2012. You can read about my experience at: <p>&nbsp;</p> <p>&nbsp;</p>www.army.mil/article/9012...
My name is Jason Gaya and I am an avid blogger. I write on various health-care compliance courses mandated by HIPAA, OSHA, Joint Commission and Red Flags rule My Course Catalog http://www.empowerbp...
Hi, My name is Fiona Murphy. I am 40 years of age and live in Dublin, Ireland.. Myself and my husband Andy have 3 children. Sean (6), Donal (3) and Aisling (almost 2). Donal has Ring 22. I would lo...
Hiya! My name is Sara and I am currently 31 years old and a MSW student. I have been married to my best friend, Ross, for over ten years and we still love being together :) I have three children, T...

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