Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Catamenial Pneumothorax

What is Catamenial Pneumothorax?

Catamenial pneumothorax is a rare condition characterized by the collapse of a lung occurring in conjunction with menstrual periods.

 

Catamenial pneumothorax is a rare condition characterized by the collapse of a lung occurring in conjunction with menstrual periods.
Acknowledgement of Catamenial Pneumothorax has not been added yet.
Prevalence Information of Catamenial Pneumothorax has not been added yet.
Synonyms for Catamenial Pneumothorax has not been added yet.
Cause of Catamenial Pneumothorax has not been added yet.
Symptoms for Catamenial Pneumothorax has not been added yet.
Diagnosis of Catamenial Pneumothorax has not been added yet.
Diagnostic tests of Catamenial Pneumothorax has not been added yet
Treatments of Catamenial Pneumothorax has not been added yet.
Prognosis of Catamenial Pneumothorax has not been added yet.
Tips or Suggestions of Catamenial Pneumothorax has not been added yet.
References of Catamenial Pneumothorax has not been added yet.
Catamenial pneumothorax Created by lizzieanddarcy
Last updated 23 Aug 2008, 05:15 AM

Posted by lizzieanddarcy
21 Aug 2008, 06:02 AM

Catamenial pneumothorax often involves endometriosis of the diaphragm, which causes the lung to collapse during a woman's menstrual cycle. It primarily effects women in their 30's and 40's, and is almost always right-sided. Many women afflicted with this condition have been previously diagnosed with pelvic endometriosis. Symptoms include chest and back pain, dizziness and shortness of breath, often accompanied by a crackling sound upon inhalation. Treatments include repair of holes in the diaphragm or removal of endometrial implants from the lung or pleura. Pleurodesis often accompanies video assisted thoracic surgery (VATS) to accomplish this repair. Additional treatments include hormonal suppression therapy using continuous birth control pills or gonadotropin releasing hormone agonists. Hysterectomy with the removal of the ovaries has also been a treatment of choice among patients and has shown some long term success. My twin sister and I were diagnosed with catamenial pneumothorax five years ago. We endured many thoracic treatments and continued to have collapses, until our hysterectomies. Since then, we have been collapse-free! Our experiences and additional information on this rare condition can be found at www.catamenial-pneumothorax.com Lizzieanddarcy

Community External News Link
Title Date Link
Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

My twin sister and I have c...

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

Catamenial pneumothorax

Created by lizzieanddarcy | Last updated 23 Aug 2008, 05:15 AM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.