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Castleman's Disease

What is Castleman's Disease?

Castleman's Disease is a rare disorder characterized by non-cancerous tumors that may develop in the lymph node tissue at a single site or throughout the body.

 

Castleman's Disease is a rare disorder characterized by non-cancerous tumors that may develop in the lymph node tissue at a single site or throughout the body.
Acknowledgement of Castleman's Disease has not been added yet.
Prevalence Information of Castleman's Disease has not been added yet.
Synonyms for Castleman's Disease has not been added yet.
Cause of Castleman's Disease has not been added yet.
Symptoms for Castleman's Disease has not been added yet.
Diagnosis of Castleman's Disease has not been added yet.
Diagnostic tests of Castleman's Disease has not been added yet
Treatments of Castleman's Disease has not been added yet.
Prognosis of Castleman's Disease has not been added yet.
Tips or Suggestions of Castleman's Disease has not been added yet.
References of Castleman's Disease has not been added yet.
Science Magazine article on Castleman's Created by graychan
Last updated 12 Oct 2016, 06:55 PM

Posted by graychan
12 Oct 2016, 06:55 PM

Patient story and scientific information on Castleman's in Science Magazine, Vol. 353, Pages 212-215, 2016.

Castlemans Disease Created by samoyed1
Last updated 8 Jan 2014, 12:58 AM

Posted by mjh1967
8 Jan 2014, 12:58 AM

Thank you VERY much!

Posted by samoyed1
7 Jan 2014, 11:42 PM

Mine was diagnosed when they removed the entire tumour, I think thats the only way to diagnose, before that, they thought it was a nerve sheath tumour, they ruled that out and then thought it was lymphoma, right up until my results came back. Have you spoken to Jim johnstone? he can put you in touch with any experts in your area or nearest, they can diagnose you if your current place cannot. Do you use FB? this is pretty active International Castlemans Disease Organization https://www.facebook.com/groups/48343887930/ also https://www.facebook.com/care4castlemans and the web page which Jim runs, he is very active on FB http://castlemans.org/

Posted by mjh1967
7 Jan 2014, 11:06 PM

I really think I do, yet the Dr.'s haven't said it in cement yet. I have very large lymph nodes in my chest, on my neck and jawline and my immune system is wiped out. I'm waiting for results on recent blood work. The dr.'s are finding me very difficult to diagnose. It's worrisome. Hope I don't get lymphoma. Thanks for answering. I had a media stenoscopy last March where they took many samples of the lymph nodes in the chest. It was inconclusive. In September I had a lung biopsy, since I also have a rare lung disease and that's when Castleman's was brought up. They just aren't willing to or have enough proof that that's what it is yet.

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Science Magazine article on Castleman's

Created by graychan | Last updated 12 Oct 2016, 06:55 PM

Castlemans Disease

Created by samoyed1 | Last updated 8 Jan 2014, 12:58 AM


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