Autoimmune Progesterone Dermatitis is a rare skin rash that affected women.
I stumble with this website while I'm researching my symptoms while my doctors were all clueless with what I'm experiencing! And I'm getting depressed why I could not know why? I'm having itching and lots of petechiae every time I start to have my period it's getting, cyclic happens every month. I feel better if I put in a very warm cloths or be I front of the heater. Or get a very warm shower. But no idea what's really is the patio physiology why I'm experiencing it and how can I avoid or prevent, or what is the possible treatment, does removal of ovaries outweigh the benefits than risk
New to the forum, but long time suffer...let's chat
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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