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Autoimmune Hypophysitis

What is Autoimmune Hypophysitis?

Autoimmune hypophysitis is a rare disorder causing inflammation of the pituitary gland.

 

Autoimmune hypophysitis is a rare disorder causing inflammation of the pituitary gland.
Acknowledgement of Autoimmune Hypophysitis has not been added yet.
Prevalence Information of Autoimmune Hypophysitis has not been added yet.
Synonyms for Autoimmune Hypophysitis has not been added yet.
Cause of Autoimmune Hypophysitis has not been added yet.
Symptoms for Autoimmune Hypophysitis has not been added yet.
Diagnosis of Autoimmune Hypophysitis has not been added yet.
Diagnostic tests of Autoimmune Hypophysitis has not been added yet
Treatments of Autoimmune Hypophysitis has not been added yet.
Prognosis of Autoimmune Hypophysitis has not been added yet.
Tips or Suggestions of Autoimmune Hypophysitis has not been added yet.
References of Autoimmune Hypophysitis has not been added yet.
Anyone out there? Created by Oceangirl
Last updated 17 May 2012, 07:27 AM

Posted by dancer7406
17 May 2012, 07:27 AM

hello just went through same thing! have been on treatment for a mnth?how r u doing? are you off prednisone yet? hope yo hear back

Posted by Oceangirl
17 Jul 2011, 02:52 AM

Just recently underwent transsphenoidal surgery for suspected pituitary adenoma. Pathology showed lymphocytic Hypophysitis autoimmune disease. Started on prednisone 60mg. Anyone with experience on this disease process? Thanks

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Anyone out there?

Created by Oceangirl | Last updated 17 May 2012, 07:27 AM


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