Atypical Odontalgia is a rare dental disorder characterized by a continuous severe aching tooth, usually occurring in a molar or in a tooth next to a molar.
|Continuous burning||Continuous burning|
|Pain||Aching pain in a tooth or in the area surrounding a tooth|
|Sensitivity to pressure||An increased sensitivity to pressure around the painful area.|
I am a 37 year old female diagnosed with AO in October of 2008. I am interested in discussion of this topic and info on any effective treatment you may have had.
I'm a 40-year-old woman from Sweden and I think that the pain that I have been suffering from for a year and a half is atypical odontalgia. I have so many questions and so few to ask. Is there anyone out there, from any part of the world, who is interested in discussing this painful disorder as well as sharing experiences?
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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