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Arachnoid Cyst

What is Arachnoid Cyst?

Arachnoid Cysts are fluid-filled sacs that are located between the brain or spinal cord and the arachnoid membrane.

 

Arachnoid Cysts are fluid-filled sacs that are located between the brain or spinal cord and the arachnoid membrane.
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Surgery suggestions Created by squish
Last updated 8 Oct 2009, 05:45 PM

Posted by squish
8 Oct 2009, 05:45 PM

I just read irish eyes post. my 13 year old son also has a cyst. Although he has not had surgery yet. we may be getting to that point. I can only imagine what you might be going thru now . I would be interested in knowing what led up to your daughters surgery, as well as the surgeons, and how she's doing now? Thanks Jen

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Community Resources
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Arachnoid Cyst Foundation

A unique site run by people that suffer from this ailment.

03/20/2017

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Surgery suggestions

Created by squish | Last updated 8 Oct 2009, 05:45 PM


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