Acute Lymphoblastic Leukemia
What is Acute Lymphoblastic Leukemia?
Acute Lymphoblastic Leukemia is a form of cancer of the white blood cells in which malignant, immature white blood cells continuously multiply and are overproduced in the bone marrow.
| Name | Description |
|---|---|
| Weakness and fatigue | Weakness and fatigue |
| Anemia | Anemia is a deficiency of hemoglobin. |
| Weight loss and/or loss of appetite | Weight loss and/or loss of appetite |
| Enlarged lymph nodes, liver and/or spleen | Enlarged lymph nodes, liver and/or spleen |
| Breathlessness | Breathlessness |
| Excessive and unexplained bruising | Excessive and unexplained bruising |
| Joint pain | Joint pain |
| Bone pain | Bone pain |
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| Title | Description | Date | Link |
|---|---|---|---|
| Leukemia & Lymphoma Society (LLS) |
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The mission of LLS is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, LLS has invested more than $600 million for research specifically targeting blood cancers. |
03/20/2017 |
Clinical Trials
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
- Complete the screening form.
- Review the informed consent.
- Answer the permission and data sharing questions.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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