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Achalasia

What is Achalasia?

Achalasia is a rare disorder affecting the lower esophageal sphincter characterized by difficulty in swallowing (dysphagia) and regurgitation of undigested food.

 

Achalasia is a rare disorder affecting the lower esophageal sphincter characterized by difficulty in swallowing (dysphagia) and regurgitation of undigested food.
Acknowledgement of Achalasia has not been added yet.
8.0http://www.coughjournal.com/content/4/1/6
Synonyms for Achalasia has not been added yet.
The official cause of Achalasia is unknown, but it is believed to be caused by infection, heredity or an autoimmune disease.
Symptoms for Achalasia has not been added yet.
Diagnosis of Achalasia has not been added yet.
Diagnostic tests of Achalasia has not been added yet
Treatments of Achalasia has not been added yet.
Prognosis of Achalasia has not been added yet.
Tips or Suggestions of Achalasia has not been added yet.
References of Achalasia has not been added yet.
new member Created by gmansmom
Last updated 18 Jan 2013, 06:07 AM

Posted by sellis
18 Jan 2013, 06:07 AM

I have Achalasia. Never heard of Triple A syndrom.

Posted by Anna
6 Apr 2011, 08:47 PM

To my 5-year-old daughter they have just diagnosed TripleA syndrom

Posted by gmansmom
18 Jul 2010, 03:10 AM

hi, i am new to this site and am trying to find people that have Allgroves syndrome (sometimes called Triple A). Achalasia is one of the A's. My son has this and I would like to find other people/parents that we could share info with. thanks! gmansmom

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Created by gmansmom | Last updated 18 Jan 2013, 06:07 AM


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