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Acanthamoeba Keratitis

What is Acanthamoeba Keratitis?

Acanthamoeba Keratitis is a rare eye infection resulting from an amoeba that is most commonly associated with incorrect contact lens handling and exposure to unsanitary conditions.

 

Acanthamoeba Keratitis is a rare eye infection resulting from an amoeba that is most commonly associated with incorrect contact lens handling and exposure to unsanitary conditions.
Acknowledgement of Acanthamoeba Keratitis has not been added yet.
1.0http://www.orpha.net
Synonyms for Acanthamoeba Keratitis has not been added yet.
Causes include using contaminated water on contact lenses, using homemade solutions to store and clean contacts, wearing contact lenses in a hot tub and swimming or showering while wearing lenses.
Symptoms for Acanthamoeba Keratitis has not been added yet.
Diagnosis of Acanthamoeba Keratitis has not been added yet.
Diagnostic tests of Acanthamoeba Keratitis has not been added yet
Treatments of Acanthamoeba Keratitis has not been added yet.
Prognosis of Acanthamoeba Keratitis has not been added yet.
Tips or Suggestions of Acanthamoeba Keratitis has not been added yet.
References of Acanthamoeba Keratitis has not been added yet.
Welcome to RareShare Created by biotechguy
Last updated 27 Dec 2008, 05:56 AM

Posted by biotechguy
27 Dec 2008, 05:56 AM

Hi Everyone, My name is David Isserman and I am one of the co-founders of RareShare. I just wanted to quickly welcome you all to the Site. If you ever have any questions about RareShare or suggestions on improving the Site, please feel free to contact me at david@rareshare.org. David

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Created by biotechguy | Last updated 27 Dec 2008, 05:56 AM


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