Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

How old were you when you began?

Anthony90 Message
8 Mar 2012, 03:17 PM

I am 22 and started using a forearm crutch a little over a yr ago. I use a manual wheelchair for long distance. I still use one crutch. I began getting muscle spasms in fall of 2011.
SallyBuckner Message
9 Mar 2012, 02:36 PM

I, a woman, started having symptoms in my early 40s. My son, born in 1955. began showing Addison's in his childhood and walking problems in his early 20s.
josepanton Message
9 Mar 2012, 08:45 PM

I amb 39 now, I started having symptoms five years ago. Luckly in my case the advance of the illness is very slow, I go jogging twice a week. Of course the way I walk is a little bit strange but I don't use any kind of crutch. I think all of us have different affection. But try to stay calm and keep a positive thinking, I hope sooner or later the science will find out a solution for us. Best.
Anthony90 Message
11 Mar 2012, 01:07 PM

Addisons? Thank you guys for your response. I think the age varies for 20-40 for men getting symptoms of amn. I have a great attitude about it, i use a wheelchair no problem. Anything you all have heard about rpi-78m?
Lonelycat Message
12 Mar 2012, 04:07 AM

Hey. I lived my life free and clear until about 2010, started walking erratically. Got a cane, use that a lot. Long distance I just don't do, but a wheelchair would be good, I just don't have one yet. I'm most worried about my health insurance after age 26, as right now I am an unemployed 25 year old. Always the optimist, only way to live with a disease like this. :) To the woman: I have a 30 yr old sister who is a carrier, but she shows no signs yet. Always keeping track. Just took an MRI the other day...MRIs are not fun. :(
Anthony90 Message
12 Mar 2012, 04:16 AM

Lonelycat you have my personal email correct?.Try not to drag around so much with a cane my uncle had to undergo surgery this year on his spine this year at 50. Imagine surgery with our legs all dead? What is wrong with MRI? Yeah they are boring but not so bad. The financial issues i can talk more if you email me.
SallyBuckner Message
12 Mar 2012, 12:59 PM

Esp to Lonelycat: About your sister: She may have no symptoms her whole life long or she may have serious ones. My sister , 75, is essentially paralyzed from waist down, has used power chair for at least 15 years. I, 5 years older, didn't show symptoms until 40, started using a cane in my 60s, then a walker, now must use a wheelchair--at least partly because I've also developed scoliosis. The usual reference to women as "carriers" is misleading, because some of us do much more than "carry" the gene/condition. I hope your sister will remain symptom free.