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trisomy 8

Rob_R Message
28 Feb 2012, 05:17 PM

lookin for anyone out there willing to share info. we have a 14 mos old daughter (12/23/10 bday) whose been diagnosed (during pregnancy) w/trisomy 8 as well as agenesis of the corpus collusm (AgCC). trisomy 8 seems rare enough but then add on AgCC along w/it & I have to think this particular disorder/condition is incredibly rare. looking to network w/others w/similar diagnoses. thx!! Rob