Do you want to connect with other parents who understand ZSD/PBDs?
The Global Foundation for Peroxisomal Disorders has an active family support group which includes families impacted by the Zellweger Spectrum disorders - Zellweger Syndrome, NALD, and IRD.
To find out more abou the GFPD and/or the family support group, please visit www.thegfpd.org.
mom to Ethan, 18 months - PBD
GFPD Family Registry & Support Group Coordinator