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Connecting with other parents

jpemarshall Message
15 Feb 2012, 06:14 PM

Do you want to connect with other parents who understand ZSD/PBDs? The Global Foundation for Peroxisomal Disorders has an active family support group which includes families impacted by the Zellweger Spectrum disorders - Zellweger Syndrome, NALD, and IRD. To find out more abou the GFPD and/or the family support group, please visit Pamela Marshall mom to Ethan, 18 months - PBD GFPD Family Registry & Support Group Coordinator