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27 Jan 2012, 06:09 PM

Hi So happy there is a new community for Chrom. 3p26.3 deletion! My 6 month old daughter has been newly diagnosed and we dont know what to expect. So far she has been dx with failure to thrive, poor feeding, central hypotonia and various brain abnormalities. In real life she is a ssssloooowww feeder, unable to roll over or sit up. She is bright, inquisitive, happy and extremely social! She is a joy and works really hard to get her toys. She is getting Pt, OT and speech to get stronger. She is getting stronger, but her gross motor skills are more like a 2-3 month old
lynnandstacyrogers Message
5 Jul 2012, 12:14 AM

Hello, my son is just over 3 years old. He was diagnosed whenhe was 8 months old. As a baby he showed signs of autism. He had tracking problems, colicky. He now seems to be developmentally average. He is short statutes, he's about the size of a 20 month old. But he talks, walks, eats pretty well. It is nice to finally meet another parent of this very rare syndrome!
Mekak2001 Message
12 Sep 2014, 10:08 PM

My daughter is 17 months and we just confirmed 3p26.3 deletion. Just wanted to introduce myself and see how both your children are doing ?
imkeemons Message
25 Jan 2015, 11:07 PM

Hi! I'm from the Netherlands and I have a boy with 3p26.3 deletion Is here anybody who can send me more information about this? Email: Greetzzzz Imke
cleanbandit Message
16 Oct 2017, 09:51 PM

Hi, I have a 7-month-old baby girl with a deletion of 3p26.3p26.1 and 3p25.3.  I am stil awaiting our appointment with the geneticist to discuss these results further.  Similar to Mangomomma above, my daughter has feeding difficulties and is small in size (although consistently on her own growth curve), hypotonia (in the neck area), and developmental delay (so far mainly in gross motor skills and communication). She also has reflux and milk protein intolerance.  Her laugh is amazing.  :-)