I am sorry to hear of your diagnosis. As you know it is a very rare and agressive lymphoma with a heavily negative prognosis for the over 65's and under 18's. To be honest it is a heavily negative prognosis for all from the research that I have done. There are some advances in the understanding of the disease in that possible treatments that work on similar diseases and now being tried, such as high dose hyper cvad chemo along with total body irriadiation and a stem cell transplant, but the treatment in itself is very severe on the body.
My symptoms were of the non skin type, swolen lymphs, from which the pain was so bad that even a morphine pump did not kill the pain, about 10% get non skin symptoms.
It is good that you will get a sort of extention from the maintainance regime and that you are pain free. I think you are also very lucky to have made it to 77, given what i know I will be lucky to make it to 50 but hope to make it till my children are grown up a bit, the youngest is only 5.
I confronted my own mortality during my treatment and was very set in that I wanted dignity and a pain free end.
I am now 18 months post treatment 27 months post diagnosis and very frail, but delighted to be here as I expected to not be.