Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Editing the "learn more about this disorder" area

weiner66 Message
16 Jan 2012, 08:37 AM

Hi All. is anyone able to edit the area about learning about this disorder? There is a fair bit of incorrect or inaccurate information there. 1. prevalence is somewhere between 1 in 500,000 and 1 in 2,500,000 the source for this information comes from orpha.net ( http://www.orpha.net/data/patho/Pro/en/Antisynthetase-FRenPro8611.pdf ) 2. Polymyositis definition is incorrect. it should be "Polymyositis (pol-e-mi-o-SI-tis) is a persistent inflammatory muscle disease that causes weakness of the skeletal muscles, which control movement. Medically, polymyositis is classified as a chronic inflammatory myopathy. Dermatomyosistis is accompanied by skin rashes" 3. Test should show blood tests for specific Antisynthetase antibodies, such as Jo-1, PL-7 PL-12 etc. 4. Treatment should include IVIG, as this is becoming a very prevalent and effective treatment. There may also be some other corrections, changes that could be made. It would be nice to have a little more accurate information for those seeking it. Thanks
Melissak Message
16 Jan 2012, 03:48 PM

Thank you so very much letting us know. :)