I wanted to hear what others have experienced with dental work associated with OFCD.. I have a 10 year old that is scheduled for 6 extractions and the removal of a supernumery tooth (extra). With the characteristic of delayed eruption and no clear indication as to when the permanent teeth will come in. . .I'm not sure what to do? Thoughts anyone? We are told the baby teeth are impeding the perm teeth from erupting. ????

Hello Amy I know it's been awhile since your post but I wonder if you have found our group on Facebook? OFCD awareness group. There are roughly about 30 families world wide that are effected by OFCD and can help answer questions for you within minutes. You should take a look into it.