Had 5 leaks in 2 months resulting in ICU stays. Hospital started me on the IVIG treatments. Thanks to Arturo & everyones postings, had a migraine for 1 day & intermittant, tolerable headaches. Waiting to see if insurance company approves more treatments.

Good luck to you for more IVIG therapy. I have been receiving the therapy since April of this year & I feel great. It took several months for me to start feeling better & the headaches are not too bad. I have had no leaks since I began IVIG & feel confident I will not have to worry about any future episodes. ..Donn

I am envious! I am working on getting the IVIG myself. Life is becoming intolerable for me as summer comes on. I am so glad you are both doing well:) Good luck Dfye in getting further treatment

I have been on IVIG since around July and apart from headaches at the time of treatment the results have been great. I have resumed a normal business life.