To all the fellow parents out there, I have a question. Have any of your children needed to receive physical therapy and sensory integration because of the SCLS attacks? Connor now receives PT once week to help build and strentghen his leg and core muscles and sensory integration to see if some of the nerves can refire that were damaged from the attacks. Just curious. Thanks for your input.

After the last SCLS attack in 2009, my daughter was reported to have a little nervous damage in one leg (she walked in a "stepping" way) and she started a physical therapy. Fortunately after 2-3 months she didn't need any cure, because her problem gradually disappeared.

Ela, my three year old had her first severe SCLS attack in September 2010. She was not diagnosed at this stage and they gave her a lot of fluid. She had a lot of muscle wastage and could not walk for about 2 weeks. When she started walking again, she had what they call "foot drop", which I believe is the "stepping" way. I was thinking about PT but the foot drop went away by itself after about another month. Ela's due for her third IVIG dose just before Christmas. I hope Connor's PT works for him and that all you brave, brave parents and kids have a great Christmas!